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Re: Not my first cancer circus

by JeskiM69 on Sat Oct 10, 2015 8:55 pm

I went back to my labs (all two years worth) and found the GFR in there. Every single time it just simply read >60.

So here's a note as to why it always says > 60:

"
Routine reporting of eGFR values >90 is not recommended and many labs are now reporting all values over 60 as >60. Note however that a significant (e.g. 20%) rise in creatinine while eGFR is >60 may still be important as it will usually reflect a real change in GFR. - See more at: http://www.renal.org/information-resources/the-uk-eckd-guide/about-egfr#sthash.1ioALxjD.dpuf
"

- Matt

JeskiM69

Re: Not my first cancer circus

by Multibilly on Sat Oct 10, 2015 10:25 pm

Some labs simply post whether the eGFR is > 60 or not, and other labs will give you an absolute value. The inconsistencies in the way different labs report their numbers is a constant source of confusion on this forum. In any case, your hematologist will be in a much better position to comment on what is likely going on once he/she runs the other tests.

Multibilly
Name: Multibilly
Who do you know with myeloma?: Me
When were you/they diagnosed?: Smoldering, Nov, 2012

Re: Not my first cancer circus

by JeskiM69 on Thu Nov 05, 2015 7:29 pm

My Oncologist had me complete two more tests:

1: UPEP
2: Full Body Bone Survey

Both of those tests came back completely normal.

So at this point what we are doing is to add the SPEP to my every 3 month blood work till July. July marks my 2 years post-chemo cancerversary. At that time my surveillance cuts down to every 6 months for the next 3 years.

So in the next 9 months I will have 3 more SPEPs which will bring me to a total of 4 of them in one year. This will fully establish a solid baseline on my Kappa/Lambda ratio and the other numbers.

At this my oncologist is holding off on any diagnosis until we can watch the trend of these parameters.

I agree with that; based on my previous cancer experiences that a single test does not equal diagnosis.In my case the oncologist points to the fact that my immune systems' function has been damaged and maybe changed plus the fact that I have some renal damage that we cannot read too deeply into that single number.(ratio).

She did tell me that she would order a bone marrow biopsy if I wanted to. She didn't feel it was needed at all. My thought on that was that I don't want to undergo any procedures (no matter how small the risks) that are absolutely not needed.

- Matt

JeskiM69

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