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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: No more chemo for me

by jhorner on Wed Jan 28, 2015 2:34 pm

Hello,

I just wanted to comment that I put my 72 year old mother on low-dose naltrexone (LDN) when she was 67 and diagnosed with stage 4 lung cancer. She is not only still alive, but she is also still in remission.

J

jhorner
Name: Magpie
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 2013
Age at diagnosis: 49

Re: No more chemo for me

by Alex on Wed Jan 28, 2015 11:02 pm

How refreshing to read the response to the entry referring to a deity. Once again, my visits to hospital never discuss the deity, reference books never chapter on the topic, and doctors never spend consultation time discussing the following of a deity.

In this forum, a rich site for scientific information and research points, the reference to relying on such a source seems oddly out of place.

Blogs are rich in the fiction or fact depending on beliefs but to follow a dubious or unproven direction in place of doctor's advice could prove unwise.

Alex

Re: No more chemo for me

by stann on Fri Jan 30, 2015 6:32 pm

I'm with CindyLouise on this one. (I don't mind the God references, but alternative therapy makes my blood pressure go up).

I think it is our "duty" (?) to give this multiple myeloma a good fight. When younger, I didn't think like that, but now I'm a father with children and a wife, and a few employees, and I realize it's not just about me anymore.

One of the smartest guys this planet has every seen, Steve Jobs, founder of Apple, died because he decided to go alternative on a very curable type of pancreatic cancer. He had the best doctors in the world advising him to take care of his cancer with current Western methods. He chose to eat berries and meditate. Six months later, it was too late. He HIGHLY regretted his decision to go the alternative route because he knew it cost him his life. Instead of his children coming home from college to visit with mom and dad, they come home from college and mourn that there is no dad sitting at the dinner table, making pancakes in the morning, etc, etc. And it was totally unnecessary!

If you are elderly, kids are grown and have their own families, and you don't want to put up with the chemo, I get that. But if you have kids, or young adult children, it's not about only you anymore.

We now have a measles outbreak in the USA; 20-30 years ago it had been eradicated. The ONLY reason we have this outbreak is because parents have decided that Western medicine is bad and they did not vaccinate their children.

In Third World countries, where they see the death and carnage from not getting childhood vaccinations, there are women carrying their babies for miles and miles down dusty, hot roads to vaccination clinics because they've seen first hand what Americans used to see 50 plus years ago.

I'd be willing to bet that some of us multiple myeloma patients will die as a result of these careless parents.

Adding certain aspects of alternative therapy at the same time as conventional therapy is probably not that bright either. These modern methods have been tested and proven on regular people, not people with 10,000 times the amount of vitamin A in their system, or who do daily coffee enemas, etc.

If I went overboard, sorry. But every time I hear about this measles outbreak, I do not hear the media put the blame where it should be.

The most anti-vaccine county in California is Marin County. Marin County is probably in the top 1% for having the most "educated" people in the state, too. This alternative view of medicine is so odd. If I were an anthropologist, I'd find this fascinating. But, as somebody with a compromised immune system, it only makes me angry.

Over and out -- everybody have a nice weekend!

stann

Re: No more chemo for me

by Guitarnut on Fri Jan 30, 2015 11:42 pm

Well said Stann, well said indeed! I coudln't add anything to your post other than to say I com­pletely agree with all of it.

Guitarnut
Name: Scott Hansgen
Who do you know with myeloma?: Me
When were you/they diagnosed?: Sept 2011
Age at diagnosis: 47

Re: No more chemo for me

by cindylouise on Sat Jan 31, 2015 11:44 am

I also just want to say: Very well said Stann! The anti-vaccine culture in this country shocks and angers me. I'm guessing it won't sink in for these people until polio makes its way back from the dead! The risk to their own children is bad enough, but to risk other children and other people whose bodies cannot tolerate the exposure is mind boggling.

cindylouise

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