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NICE guidance on Imnovid (Pomalyst) - update

by Beacon Staff on Fri Feb 13, 2015 1:18 pm

For Beacon readers and forum participants in the UK, some of you may have heard news coming out today about the status of NICE's evaluation of Imnovid / Pomalyst (pomalidomide). We're including below a press release from NICE regarding the status of the guidance that it is developing.

There have been press reports about this latest news from NICE, but they may not completely make clear that the guidance is still in draft form. The guidance is not yet finalized. Proposed NICE guidance goes through a series of drafts, with each draft subject to public comment and, in some stages, appeal.

The current draft that is discussed in today's press release is now open to appeal. A representative from NICE has informed us that, If there are no appeals, the earliest the guidance would take effect is this March. If appeals occur, the process would extend out by several additional months.

Thus, while the development of the guidance is heading in a direction that does not look good for access to Imnovid / Pomalyst in the UK, the story has not yet reached the final chapter.

Moreover, even if the guidance is finalized in its current form, there are cases where NICE and the manufacturer have negotiated a revision to the final guidance.

So stay tuned.

A couple of additional notes

  • For readers and forum participants not from the UK, NICE is the National Health Service authority for England and Wales that establishes guidelines as to what drugs and medical procedures will be reimbursed by the National Health Service (NHS), and under what conditions. The National Health Service is the publicly funded health system in the UK. Most hospitals in the UK are operated by the NHS, and most physicians are employees of the NHS.)
     
  • If you're interested in reading other reports on today's news, you'll find several by doing a news search on the keyword "Imnovid".
NICE issues final draft guidance on pomalidomide for blood cancer

Press Release (February 13, 2015) - NICE has issued final draft guidance not recommending pomalidomide, also known as Imnovid, for treating multiple myeloma.

Multiple myeloma is a type of cancer that affects plasma cells, which are white blood cell found in the bone marrow. Although it is incurable, there are a number of treatment options to help slow the progress of the disease and improve quality of life. NICE recommends thalidomide for most patients as a first line treatment, and bortezomib for people who are unable to take thalidomide and also as an option after the first treatment has stopped working. For people who have received two prior treatments NICE recommends lenalidomide. This appraisal considers the use of pomalidomide for treating multiple myeloma after third or subsequent relapse.

Commenting on the draft guidance, Sir Andrew Dillon, NICE chief executive, said: “NICE has already recommended a number of treatment options for multiple myeloma – thalidomide, bortezomib and lenalidomide – which can greatly improve the length of time someone can live with the disease and their quality of life. Unfortunately we cannot recommend pomalidomide as the analyses from Celgene, the company that markets pomalidomide, showed that the drug does not offer enough benefit to justify its high price.”

The draft guidance is now with consultees, who have the opportunity to appeal against it. Until NICE issues final guidance, NHS bodies should make decisions locally on the funding of specific treatments. This draft guidance does not mean that people currently taking pomalidomide will stop receiving it. They have the option to continue treatment until they and their clinicians consider it appropriate to stop.

About the draft guidance

  1. Poma​lidomide, in combination with dexamethasone, is not recommended within its marketing authorisation for treating relapsed and refractory multiple myeloma in adults who have had at least 2 prior treatments, including lenalidomide and bortezomib, and whose disease has progressed on the last therapy.
     
  2. The draft guidanceis available at https://www.nice.org.uk/guidance/indevelopment/GID-TAG448 .
     
  3. Due to the limitations in the evidence presented by the company, the Committee was not able to judge with any confidence how much more effective pomalidomide was compared with the current treatment options.
     
  4. Poma​lidomide is administered orally. The recommended dosage is 4 mg once daily, taken on days 1 to 21 of repeated 28 day cycles. Treatment should continue until disease progression. Adverse reactions may be managed by interrupting or reducing the dose. The price of a pack (21 tablets) of 1 mg, 2 mg, 3 mg or 4 mg tablets is £8,884.
     
  5. All cost per QALY (Quality Adjusted Life Year) figures presented by the company were over £50,000 compared with bortezomib, and over £70,000 compared with bendamustine plus thalidomide and dexamethasone, and would further increase when a number of more realistic assumptions were included in the model.
     
  6. The Committee was not able to judge with any confidence how much more effective pomalidomide was compared with the current treatment options based on the available evidence provided before and after consultation. However, bearing in mind the magnitude of the differences in the overall survival estimates between pomalidomide and high dose dexamethasone in the trial, and all data presented to the Committee for comparators, the Committee was persuaded that pomalidomide extends life for at least 3 months on average when compared with standard NHS care. However, considering the currently presented ICERs, the Committee concluded that even with the end-of-life criteria met, the weighting that would have to be placed on the QALYs gained would be too high to consider pomalidomide a cost-effective use of NHS resources. Also, the Committee concluded that the uncertainty in the relative effectiveness of pomalidomide compared with established NHS practice would affect any weighting that could be placed on the QALYs gained.
     
  7. Poma​lidomide is not recommended for use within NHS Scotland (http://www.scottishmedicines.org.uk/SMC_Advice/Advice/972_14_pomalidomide_Imnovid/pomalidomide_Imnovid).
     
  8. The company estimates a patient population of 669 in England.

Beacon Staff

Re: NICE guidance on Imnovid (Pomalyst) - update

by Nancy Shamanna on Fri Feb 13, 2015 2:05 pm

I am sorry to hear this news about pomalidomide (Imnovid, Pomalyst) in the UK.

We are getting closer to having it available in Canada! It is currently in a pricing review system. To my mind, as an admittedly amateur advocate, Pomalyst would substitute in for Revlimid. They are both expensive drugs (I don't know the pricing, though, since I don't have access to government files), but you wouldn't be taking both at the same time!! Pomalyst has been shown to help people who become resistant to Revlimid, thus extending one's life span. And isn't that what public health care should be all about, helping to save lives and extend life too. People have been shown to live good lives with good QOL too, taking Pomalyst (Imnovid)!

I have a related question too. When a drug is approved by the European Union, does that mean that every individual country in the EU has the opportunity to review it and fund it. It's not automatically funded in every country, is it? I keep trying to draw comparisons to my country, where a drug can be approved and even a price determined, but each of our 19 health care regions (provinces plus territories) will decide whether or not to fund the drug. Actually I think that 18/19 will decide, but that's sort of a technicality.

Nancy Shamanna
Name: Nancy Shamanna
Who do you know with myeloma?: Self and others too
When were you/they diagnosed?: July 2009

Re: NICE guidance on Imnovid (Pomalyst) - update

by LauraScot on Fri Feb 13, 2015 5:14 pm

Hello Beacon Staff,

Thank you for reporting on UK drug issues.

As you say, NICE is for England and Wales. Scotland makes its own drugs approval decisions within the NHS using a different body - Scottish Medicines Consortium. (NHS Scotland is controlled by the Scottish parliament, not the UK).

Point 7 below is out of date, and pomalidomide is now approved for use in Scotland.

Best wishes,
Laura (from Scotland)

---------------------------------------------------------------
Advice

Following a resubmission:

Poma​lidomide (Imnovid®) is accepted for use within NHS Scotland.

Indication under review: in combination with dexamethasone for the treatment of adult patients with relapsed and refractory multiple myeloma who have received at least two prior treatment regimens, including lenalidomide and bortezomib, and have demonstrated disease progression on the last therapy.

Poma​lidomide plus dexamethasone significantly increased progression-free survival compared with high-dose dexamethasone in patients with refractory or relapsed and refractory multiple myeloma.

This advice takes account of the benefits of a Patient Access Scheme (PAS) that improves the cost-effectiveness of pomalidomide. This advice is contingent upon the continuing availability of the patient access scheme in NHS Scotland or a list price that is equivalent or lower.

Detailed Advice (PDF)
Briefing note
Drug Details

Drug Name: pomalidomide (Imnovid)
SMC Drug ID: 972/14
Manufacturer: Celgene Ltd
Indication: in combination with dexamethasone for the treatment of adult patients with relapsed and refractory multiple myeloma who have received at least two prior treatment regimens, including lenalidomide and bortezomib, and have demonstrated disease progression on the last therapy.
BNF Category: 8. Malignant disease and immunosuppression
Sub Category: 8.1 Cytotoxic drugs
Submission Type: Resubmission
Status: Accepted
Date Advice Published: 8 December 2014

LauraScot
Name: Laura
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2013
Age at diagnosis: 47

Re: NICE guidance on Imnovid (Pomalyst) - update

by Beacon Staff on Fri Feb 13, 2015 5:32 pm

Thanks for the additional information, Laura. It's interesting that NICE misstated the reimbursement approval status of Imnovid in Scotland. Presumably, whatever database they use to track SMC decisions was not updated with the most recent information.

What happened in Scotland is also instructive because underscores a point we made above, which is that even "final" guidance can be amended later after additional discussions between the manufacturer and the authorities who develop the guidance.

Nancy - You really can't generalize about how the different countries in Europe approach access to drugs once they are approved. There are a lot of different systems. There are countries like France, Italy, and Spain, which regulate access through direct price control mechanisms. Then you have the UK, which carries out health economic evaluations to determine if the drug's price warrants it being reimbursed by the health system. And there are plenty of other approaches.

Beacon Staff

Re: NICE guidance on Imnovid (Pomalyst) - update

by LauraScot on Fri Feb 13, 2015 6:04 pm

Hi Nancy,

My under­stand­ing is that the EU drug approval does not replace each member state's approval drugs. Having a central EU body is meant to simplify and reduce the cost of drug approval. And, certainly, EU approval does not mean it's automatically available in each EU member state.

Once approved for use in the UK it does not necessarily mean your regional NHS body will fund the drug. So even though pomalidomide is approved for use in Scotland, my NHS region, NHS Greater Glasgow, may or may not offer it as a treatment (and pay for it). Sounds like you have a similar set up in Canada?

It may not be perfect, but universal health care is a wonderful thing.

Laura

LauraScot
Name: Laura
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2013
Age at diagnosis: 47

Re: NICE guidance on Imnovid (Pomalyst) - update

by Nancy Shamanna on Fri Feb 13, 2015 11:34 pm

Thanks for the info on how the drug approvals and funding work in the UK and in the EU as a whole, Laura and Beacon Staff! That is interesting to learn about! I agree with you, Laura, our universal health care system is a real blessing to us.

Nancy Shamanna
Name: Nancy Shamanna
Who do you know with myeloma?: Self and others too
When were you/they diagnosed?: July 2009


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