I'm new to the group after just being diagnosed with multiple myeloma on my 52nd birthday last week. I have been having leg, back and rib pain for months. Finally after multiple tests the multiple myeloma diagnosis was made.
The Dr. seems to be moving quickly and I will be starting RVD as soon as the medicines arrive. Dr. says in four months I will then go to Roswell to have my bone marrow transplant (using my own) He says I will most likely be there about one month. Buffalo is about 3.5 hours from my home so this will suck but they say they are an awesome place to go.
I'm glad they they finally figured out was going on but the emotional roller coaster since then has been a strain. I feel myself tire very easily and the pain on some days is not tolerable. I have multiple lesions in my pelvic area and around the T-7 -T-12 areas.
If anyone has any thoughts or suggestions of how these treatments went for them please share, I would love to hear the stories good or bad.
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4 posts
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medic944 - Name: Clayton Bronson
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: December 2013
- Age at diagnosis: 52
Re: New member looking for feedback
I think you will feel much better after reading this discussion here in the forum:
https://myelomabeacon.org/forum/are-you-beating-the-odds-10-years-since-diagnosis-t2399.html
https://myelomabeacon.org/forum/are-you-beating-the-odds-10-years-since-diagnosis-t2399.html
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rumnting - Who do you know with myeloma?: husband
- When were you/they diagnosed?: 4/9/11
- Age at diagnosis: 54
Re: New member looking for feedback
Clayton,
You are doing the right thing. I was diagnosed at 54, and had essentially the same treatment as you are going through. The odds are high that things will work out well for you.
The good news is that there are lots of treatment options, and they can likely keep you going for years or decades.
The bad news is there are no easy choices with myeloma. You have to educate yourself, make sure your doctor is good, and be confident in your decisions.
The approach you are starting on sounds fine, and I'm sure you will do well.
David
You are doing the right thing. I was diagnosed at 54, and had essentially the same treatment as you are going through. The odds are high that things will work out well for you.
The good news is that there are lots of treatment options, and they can likely keep you going for years or decades.
The bad news is there are no easy choices with myeloma. You have to educate yourself, make sure your doctor is good, and be confident in your decisions.
The approach you are starting on sounds fine, and I'm sure you will do well.
David
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Arizonan - Name: Arizonan
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: April 2010
- Age at diagnosis: 54
Re: New member looking for feedback
I am just home from a stern cell /bone marrow transplant using my own stem cells. My transplant was December 2nd,2013.
What a great Dr. you have! Like you, I was diagnosed and went through treatment of Revlimid, Velcade and the other various drugs, plus radiation, that are used leading up to the stem cell transplant. I went through 4 months of those treatments and then had which I had the transplant. I have been home less than 1 month. Try to count your blessings because you are eligible for the transplant and this is going to be so great for regaining your health. Plus, there are other wonderful additional treatments being worked on and hopefully in our lifetime, there will be a cure. Yes, there are times you feel really bad, but don't feel sorry for yourself - you are one of the lucky ones. I know it is a shock, and you need a little time, but you and your Dr. are on the right track. Meanwhile, think about how you are going to manage to be in Boston ...do you have someone who will go with you? if so, try to make plans as to where this person will stay. Find out all you can about the best places for whoever might be going with you because the available places around the big medical centers are sometimes very scarce. YOU will be well taken care of in the hospital. Take each day as it comes and enjoy what you can each day. Being positive really helps. Contact me anytime, I am just steps ahead of where you are going.
What a great Dr. you have! Like you, I was diagnosed and went through treatment of Revlimid, Velcade and the other various drugs, plus radiation, that are used leading up to the stem cell transplant. I went through 4 months of those treatments and then had which I had the transplant. I have been home less than 1 month. Try to count your blessings because you are eligible for the transplant and this is going to be so great for regaining your health. Plus, there are other wonderful additional treatments being worked on and hopefully in our lifetime, there will be a cure. Yes, there are times you feel really bad, but don't feel sorry for yourself - you are one of the lucky ones. I know it is a shock, and you need a little time, but you and your Dr. are on the right track. Meanwhile, think about how you are going to manage to be in Boston ...do you have someone who will go with you? if so, try to make plans as to where this person will stay. Find out all you can about the best places for whoever might be going with you because the available places around the big medical centers are sometimes very scarce. YOU will be well taken care of in the hospital. Take each day as it comes and enjoy what you can each day. Being positive really helps. Contact me anytime, I am just steps ahead of where you are going.
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BobGuetersloh - Who do you know with myeloma?: myself
- When were you/they diagnosed?: June 2013
- Age at diagnosis: 70
4 posts
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