[Midwestern Grace]

Nearly 3 years in & grateful

by Midwestern Grace on Mon Dec 12, 2016 7:48 pm

I was diagnosed with stage II multiple myeloma in January 2014. My treatment began with 4 cycles of cyclophosphamide, Velcade, and dexamethasone (CyBorD), followed by an autologous stem cell transplant (ASCT). I received infusions of Zometa every 2 months for 2 years. For maintenance, I take 10 mg of Revlimid daily.

I've responded well to treatment and have been enjoying my life. On days when I feel good, I do something I love. On days when I'm tired, I rest. I've regained most of the strength I lost during treatment, and I've been feeling great lately.

I am thankful for the treatment options that now exist, and am grateful for the health care pro­fessionals (e.g., doctors, nurses, physicians assistants, nurse practitioners) who have worked to keep me well.

Treatment works, at least for some, and I've found most side effects to be manageable.

[kshornb]

Re: Nearly 3 years in & grateful

by kshornb on Tue Dec 13, 2016 7:35 am

Hi MW Grace:

Congrats on your 3 year anniversary! I am sorry you had to join our illustrious club, but everyone here is very nice, and I certainly have learned a lot about our disease through the people on this forum.

Your treatment sounds very similar to mine; CyBorD - mine was 6 cycles though; autologous stem cell transplant; Zometa monthly (for 18 months), and now maintenance Revlimid (5 mg). I didn't tolerate the 10 mg very well. You are about a year and a half ahead of me though, so I am sure I can learn a lot from your experiences.

I didn't notice that you included what type of myeloma you have (if you don't mind my asking). I have lambda light chain myeloma.

Hope you have a wonderful holiday, and wish you the very best.

Kathleen