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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: Myeloma specialists in Los Angeles / San Francisco areas

by Ladyaero on Mon Mar 07, 2016 2:28 pm

Sarah123,

Just wanted to share that Kaiser does have collaborations with specialists outside the Kaiser, but you have to find a doctor who is willing to do so. We are in Northern California, so I'm afraid my info won't be super helpful to you, but our Kaiser doctor regularly consults with specialists at UCSF and Stanford, and Kaiser 100% covered my husband's treatment and transplant at Stanford, as well as later consultations with doctors there (as long as his doctor said it was what was needed, Kaiser said OK).

I hope that are able to continue to "shop around" with Kaiser doctors until you find one that gives you what you need. Good luck!

Ladyaero

Re: Myeloma specialists in Los Angeles / San Francisco areas

by coop223 on Tue Mar 08, 2016 11:51 am

I go to USC Keck in Los Angeles. Dr. Ann Mohrbacher is excellent and has treated me for 5 years. Excellent staff and excellent oncologist. Highly recommended.

coop223
Name: derek cooper
Who do you know with myeloma?: Me
When were you/they diagnosed?: November 2011
Age at diagnosis: 57

Re: Myeloma specialists in Los Angeles / San Francisco areas

by JimNY on Tue Mar 08, 2016 12:18 pm

One thing Coop didn't mention about his experience with USC / Dr. Mohrbacher, but I think might be worth mentioning, is that Dr. Mohrbacher has made it possible for Coop to take Velcade at home, rather than requiring him to go to a doctor's office every time he has to do a Velcade injection. From what I see here in the forum and talking to other patients, there are not many doctors who are open minded enough to let their patients self-inject Velcade.

Coop discusses his experience self-injecting Velcade in this forum thread:

"Self-injecting Velcade - my experience" (started Aug 17, 2014)

JimNY

Re: Myeloma specialists in Los Angeles / San Francisco areas

by coop223 on Thu Mar 10, 2016 11:41 am

Not only is she a great doctor, she will take cost and distance you have to travel into con­sider­a­tion. She works with you to make it convenient for your treatment. I've never had such an intelli­gent and com­passionate doctor. I trust her with my life.

coop223
Name: derek cooper
Who do you know with myeloma?: Me
When were you/they diagnosed?: November 2011
Age at diagnosis: 57

Re: Myeloma specialists in Los Angeles / San Francisco areas

by bfukano on Wed Mar 23, 2016 11:41 pm

In the San Francisco area at UCSF, the multiple myeloma specialists are Dr. Jeff Wolf and Dr. Tom Martin. Their office is in the 400 Parnassus Ave Medical Building.

bfukano

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