Then, in November 2014, he had a pathologic fracture of his clavicle which had to be surgically put back together with a plate and screws. PET scan showed lesions on a couple ribs, femur, hip. At that time, he began chemo of Revlimid / dex, but developed a DVT after 2 doses of dex, so was just left on Revlimid. His numbers have not come down significantly after four cycles of Revlimid, so he will now begin infusions of Kyprolis next week.
Frank is ineligible for transplant due to his age. He was a bodybuilder and health nut his whole life and always took great care of himself. This diagnosis has really thrown us for a loop. He is 81 years old, and, due to the years of heavy weightlifting, has damaged his joints. In addition he has spinal stenosis.
We have traveled the world these past 34 years and are really sorry to see those experiences end. I try to be proactive, doing research on the disease and its treatments. It can be so overwhelming and stressful.
We are hopeful that he will have a good response from the Kyprolis. If anyone has any suggestions for us, we are open! I will read many of the posts here and educate myself further as to what we can expect.
