It passed right over my head but yesterday my husband's doctor mentioned that he has lymphoma. He is being treated for multiple myeloma.
Is this possible?
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5 posts
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Joannem - Name: Jo Anne
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: February 2016
- Age at diagnosis: 75
Re: Multiple myeloma and lymphoma at the same time?
Hi Jo Anne,
I would suggest reading Dr. Shah's comments and consider his advice in this thread:
"Recently diagnosed with lymphoma & myeloma" (started May 9, 2015)
I would suggest reading Dr. Shah's comments and consider his advice in this thread:
"Recently diagnosed with lymphoma & myeloma" (started May 9, 2015)
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Multiple myeloma and lymphoma at the same time?
Yes, it is possible. I've been living with myeloma since 2008 and was diagnosed with acute lymphoblastic leukemia in Oct. 2016. I only have 2 more induction treatments for the leukemia and continue with Velcade for the myeloma.
Not fun, but doing ok.
Nancy in Phila
Not fun, but doing ok.
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Multiple myeloma and lymphoma at the same time?
Hi,
My husband has just been diagnosed with a similar situation. He was first diagnosed with multiple myeloma in late 2009 and was on a monitoring regimen until January 2016 when he commenced treatment. He didn't respond adequately to the standard bortezomib (Velcade), dexamethasone, and cyclophosphamide treatment regimen and so progressed onto a clinical trial. Whilst participating on a clinical trial of carfilzomib (Kyprolis), dexamethasone, and thalidomide over the past 7 months, he developed stomach pain and experienced significant weight loss (approximately 22 kg / 45 lbs over that time period).
Two weeks ago he experienced acute stomach pain that rendered him unable to move and was taken to the emergency department and was found to have a perforated stomach due to a tumour that has subsequently been diagnosed as a B-cell lymphoma. His stomach, spleen, and part of the pancreas had to be removed due to the tumour.
Our myeloma specialist has said he can see no evidence of the lymphoma in bone marrow biopsies and blood tests taken since 2009. The first sign of a malignancy in the stomach area was via a PET scan approximately a month ago. He says it's very rare to have two primary blood malignancies concurrently.
The preliminary advice received is that once my husband has recovered from the major abdominal surgery he has just had that a couple of cycles of chemo targeting lymphoma will be administered (to clean up any residual cells; they are pretty confident it was limited to the stomach area only) and that then he will progress to an autologous stem cell transplant as his paraprotein levels are at 'trace' levels following the clinical trial. He was primed for the transplant when his stomach perforated and required major surgery and subsequent discovery of the lymphoma.
It appears that concurrent multiple myeloma and lymphoma is very rare. I therefore am in the process of organising a second opinion from the major cancer hospital here in Melbourne (Peter MacCallum Cancer Centre) to validate the approach that is being proposed by our current care team (at the Alfred Hospital).
I am feeling pretty overwhelmed. We have three kids 3, 9, and 11 years old. My key desire is to have some understanding of the forward look ahead. Given my husband's poor response to the standard of care in Australia (bortezomib) and now the lymphoma issue, I am developing a picture that his disease, whilst slow to move initially, is proving to be aggressive and difficult to treat. I'd appreciate any advice on this.
All the best.
My husband has just been diagnosed with a similar situation. He was first diagnosed with multiple myeloma in late 2009 and was on a monitoring regimen until January 2016 when he commenced treatment. He didn't respond adequately to the standard bortezomib (Velcade), dexamethasone, and cyclophosphamide treatment regimen and so progressed onto a clinical trial. Whilst participating on a clinical trial of carfilzomib (Kyprolis), dexamethasone, and thalidomide over the past 7 months, he developed stomach pain and experienced significant weight loss (approximately 22 kg / 45 lbs over that time period).
Two weeks ago he experienced acute stomach pain that rendered him unable to move and was taken to the emergency department and was found to have a perforated stomach due to a tumour that has subsequently been diagnosed as a B-cell lymphoma. His stomach, spleen, and part of the pancreas had to be removed due to the tumour.
Our myeloma specialist has said he can see no evidence of the lymphoma in bone marrow biopsies and blood tests taken since 2009. The first sign of a malignancy in the stomach area was via a PET scan approximately a month ago. He says it's very rare to have two primary blood malignancies concurrently.
The preliminary advice received is that once my husband has recovered from the major abdominal surgery he has just had that a couple of cycles of chemo targeting lymphoma will be administered (to clean up any residual cells; they are pretty confident it was limited to the stomach area only) and that then he will progress to an autologous stem cell transplant as his paraprotein levels are at 'trace' levels following the clinical trial. He was primed for the transplant when his stomach perforated and required major surgery and subsequent discovery of the lymphoma.
It appears that concurrent multiple myeloma and lymphoma is very rare. I therefore am in the process of organising a second opinion from the major cancer hospital here in Melbourne (Peter MacCallum Cancer Centre) to validate the approach that is being proposed by our current care team (at the Alfred Hospital).
I am feeling pretty overwhelmed. We have three kids 3, 9, and 11 years old. My key desire is to have some understanding of the forward look ahead. Given my husband's poor response to the standard of care in Australia (bortezomib) and now the lymphoma issue, I am developing a picture that his disease, whilst slow to move initially, is proving to be aggressive and difficult to treat. I'd appreciate any advice on this.
All the best.
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suefromoz - Name: Sue from Oz
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: 2008
- Age at diagnosis: 53
Re: Multiple myeloma and lymphoma at the same time?
Hi Jo Anne,
I had been fighting two lymphoproliferative disorders (hairy cell leukemia and an unnamed T-cell clonal expansion) before the arrival of my multiple myeloma. In my case, I think my bone marrow had become so distressed due to my lymphomas that I was left susceptible to the development of multiple myeloma. Also, I should mention that I had MGUS for almost eight years before I was diagnosed with multiple myeloma.
I am just finishing a stem cell transplant and am hopeful that this will help control my existing lymphomas even though I know the transplant will not provide a cure. When I get more info on this, I will post the results.
Joe
I had been fighting two lymphoproliferative disorders (hairy cell leukemia and an unnamed T-cell clonal expansion) before the arrival of my multiple myeloma. In my case, I think my bone marrow had become so distressed due to my lymphomas that I was left susceptible to the development of multiple myeloma. Also, I should mention that I had MGUS for almost eight years before I was diagnosed with multiple myeloma.
I am just finishing a stem cell transplant and am hopeful that this will help control my existing lymphomas even though I know the transplant will not provide a cure. When I get more info on this, I will post the results.
Joe
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Wobbles - Name: Joe
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: June 2016
- Age at diagnosis: 67
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