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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: My visit to NIH

by Ruchi on Tue Nov 27, 2012 1:56 pm

Hi Dana, thank you so much for offering to help. I really appreciate it. It means a lot:). As I live in Chicago, I would see if I can go to a medical center nearby us for getting a second opinion once my parents arrive. I would just have to check out the insurance options and other costs as the visitors insurance that they can have, will not cover any pre-existing conditions.

Ruchi

Re: My visit to NIH

by Stan W. on Thu Dec 20, 2012 12:46 pm

Ruchi wrote:
> mrsv118 wrote:
> > elizabeth104 I had an appointment. on Monday at 0930 and was done at 4pm. this
> > included: admissions stuff, labs, skeletal survey, urine test and bone
> > marrow biopsy. Next day was 1130 appointment for clinic , getting results and
> > meeting with doctor landgran. They are very busy so plan on the day being
> > long. We were out at 3pm on day two. All that being said, they gave us
> > all the time we needed and never acted rushed.
>
> Hi mrsv118 can you please tell me the cost for all of the above tests that were done
> during your visit to NIH. Basically I leave in Chicago and my parents are coming here
> in Jan from India. My mother was diagnosed with Plasmacytoma a year back and now is
> on daily maintenance dose of Revlimid 10mg. I would want to have a second opinion but
> as they are coming from India, their insurance will not cover any of this. So I just
> wanted to have an idea what would the cost be if we decided to visit NIH for a second
> opinion.
Ruchi,
I went to the NIH last summer. All exams, tests, etc. are done at no cost. I did have to pay for my train tickets, hotel & meal. But, if I had entered into a clinical trial, they would have paid part of those costs for each returning visit.
It's a government institution and , as the doctor told me, paid for by our taxes. Not sure if it's available to citizens from another country. But, you can always ask.

Stan W.
Name: Stan
Who do you know with myeloma?: Myself
When were you/they diagnosed?: SMM-April 2012
Age at diagnosis: 58

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