[Rhonda]

Muscle pain after stem cell transplant

by Rhonda on Wed Dec 02, 2015 8:35 am

Hello

I had a stem cell transplant in August of this year and since that time I have been experiencing muscle and nerve pain. Regardless of which muscle I use, I encounter some degree of discomfort behind my eyes, jaw, arms, legs, fingers etc.

I started to get numbness in my right hand when I sleep and decided to start physical therapy.

I am blaming the majority of my discomfort on the transplant because I didn't experience this prior to having it. The good news is it seems to be subsiding (other than the numbness in my hand) and when a storm seems to be moving in then I really ache.

Is it common to have muscle pain after the transplant? If you have experienced muscle pain, has it stopped or is this something I may deal with for the rest of my life?

I am hoping others might be willing to share their stories of how they have dealt with this.

Thank you,
Rhonda

[DallasGG]

Re: Muscle pain after stem cell transplant

by DallasGG on Wed Dec 02, 2015 1:23 pm

I started a thread on muscle soreness after my transplant. Here it is:

"Muscle soreness after autologous stem cell transplant?" (started May 13, 2014)

[Memakes4]

Re: Muscle pain after stem cell transplant

by Memakes4 on Tue Jan 24, 2017 6:16 pm

I am on Day 74 after an autologous stem cell transplant and I have terrible muscle pain in my legs. I feel like a just ran a marathon. I do walk most days and have very gradually built up to three quarters of a mile (1.2 km).

I don't think that my walking can account for the terrible pain. I'm also wondering if this sort of pain is common at this point after a transplant and, if so, what the cause is.

[John Can]

Re: Muscle pain after stem cell transplant

by John Can on Tue Jun 13, 2017 7:55 am

I'm on day 10 after my stem cell transplant and muscle pain in my legs is substantial. I'm in great shape physically with the exception of having myeloma. I'm walking daily. I cope with the pain by walking, icing, and stretching. They say to take codeine, but I feel it could be a vitamin or mineral imbalance. I going to push them today for more answers.

[goldmine848]

Re: Muscle pain after stem cell transplant

by goldmine848 on Tue Jun 13, 2017 7:26 pm

I had leg muscle soreness after my transplant. Walking is good, but of course it is weight-bearing, so more fatiguing than other forms of exercise. You may want to try the bike or the pool.

[kshornb]

Re: Muscle pain after stem cell transplant

by kshornb on Wed Jun 14, 2017 8:47 am

I also had severe muscle pain, you may want to ask them to check your vitamin D levels. I ended up being severely deficient and have to take a high-dose pill weekly. I understand that this is relatively common in myeloma patients. It definitely helped me with the cramps and pain.

Kathleen

[Nancy Shamanna]

Re: Muscle pain after stem cell transplant

by Nancy Shamanna on Wed Jun 14, 2017 9:36 am

There also is a forum thread "Muscle cramps" where many people wrote in to describe what they do for cramps. I had those sometimes when on Revlimid, and took extra strength Tylenol (aceta­mino­phen / para­cetamol) for the pain, which helped. I also take a vitamin D tablet and multi­vita­mins daily for my general health.