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Re: Muscle pain after stopping dexamethasone
One of the reasons the doctors didn't catch my muscle-targeted graft vs host disease (GVHD) was because they thought the muscle soreness I was experiencing was due to the decrease / withdrawal of my steroid dose.
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LibbyC - Name: LibbyC
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 2009
- Age at diagnosis: 43
Re: Muscle pain after stopping dexamethasone
I have all the muscle pains and cramps. I am on 5 mg Revlimid, 40 mg dex, and Velcade.
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Charlotte
Re: Muscle pain after stopping dexamethasone
Getting OFF dex is no picnic, my experience:
The posts on this topic were very helpful to me. Thanks again, Myeloma Beacon.
About a day or two after what would have been my dex Wednesday, my arm muscles started hurting, while at rest. Lifting my arms above my shoulders became quite painful.
I have not taken any Zometa injections.
However, unlike a few accounts in this discussion, I did not experience any pain in my legs nor have I had any cramps (which I experienced on the day of, and on the day after, the dex Wednesdays). I had no pain or fatigue after walking a couple of miles on the weekend! It again shows how each one of us can have different reactions to these drugs, when we start or stop taking them.
Anyway, a 500 mg Tylenol (acetaminophen / paracetamol) dose helped a lot, particularly when the arms started hurting after a meal. I wonder how the 'withdrawal' from dex caused problems with the blood circulation, mainly to my arms. Eating small portions at a time but more often also seemed to help the sudden pain (after a regular meal) in my arms, too.
Finally last night, exactly two (2) weeks after my last dex, I was able to lift my arms without much pain and I managed to do a reduced exercise routine: a few stretches and light push ups. Even that may have been a little challenge for the muscles. But I did sleep well last night (I had some difficulty sleeping over 5 hours, likely due to the lack of physical exercise). And I am feeling quite well this morning: no sore muscles and I managed my lighter exercise routine.
I think / hope that this muscle pain (arms only) will be completely gone within a couple of more days.
K_Shash
The posts on this topic were very helpful to me. Thanks again, Myeloma Beacon.
About a day or two after what would have been my dex Wednesday, my arm muscles started hurting, while at rest. Lifting my arms above my shoulders became quite painful.
I have not taken any Zometa injections.
However, unlike a few accounts in this discussion, I did not experience any pain in my legs nor have I had any cramps (which I experienced on the day of, and on the day after, the dex Wednesdays). I had no pain or fatigue after walking a couple of miles on the weekend! It again shows how each one of us can have different reactions to these drugs, when we start or stop taking them.
Anyway, a 500 mg Tylenol (acetaminophen / paracetamol) dose helped a lot, particularly when the arms started hurting after a meal. I wonder how the 'withdrawal' from dex caused problems with the blood circulation, mainly to my arms. Eating small portions at a time but more often also seemed to help the sudden pain (after a regular meal) in my arms, too.
Finally last night, exactly two (2) weeks after my last dex, I was able to lift my arms without much pain and I managed to do a reduced exercise routine: a few stretches and light push ups. Even that may have been a little challenge for the muscles. But I did sleep well last night (I had some difficulty sleeping over 5 hours, likely due to the lack of physical exercise). And I am feeling quite well this morning: no sore muscles and I managed my lighter exercise routine.
I think / hope that this muscle pain (arms only) will be completely gone within a couple of more days.
K_Shash
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K_Shash - Name: K_Shash
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: November 2014
- Age at diagnosis: 67
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