I was diagnosed in 2010, received induction therapy and a stem cell transplant in the fall of that year, and have been in remission ever since. In September of 2016 I started wheezing, and to make a long story short, after about 17 months and having to have a trach put in to help breathing, it was discovered that multiple myeloma was in the cricoid cartilage of my throat (which is causing the restriction). So it's back to treatment, then maybe throat surgery, and probably another stem cell transplant.
Treatment starts in a week, and I'm optimistic as I did well last time, and they already have my stem cells to do one more transplant, but sheesh, here we go again. The happy thought is the trach should be able to come out after all of this (fingers crossed!).
I would be interested in hearing any advice or insights anyone may have about having multiple myeloma in the throat region. I think it's rare, so it's hard to get a sense of what to expect.
Thank you!
