[Spanish Mary]

Multiple myeloma specialists in the UK

by Spanish Mary on Sat May 07, 2016 6:11 pm

Hi everyone,

I am going to spend the summer in the UK and want to use the opportunity to see a multiple myeloma specialist whilst I'm there (we don't have any in my country). We will be North in the Manchester area, but I have no problem to travel elsewhere if necessary. Any suggestions would be welcome.

In the mean time, I watch and wait. My numbers are creeping up but thankfully still firmly in MGUS:

M-spike 1,4g/dL;
Lambda light chains 74 mg/L and ratio 5.5.

The good news is that my neutrophils, which have hovered between 1.0 and 1.2, are now 1.68.

Kind regards,
Spanish Mary

[Gingerbiscuit]

Re: Multiple myeloma specialists in the UK

by Gingerbiscuit on Sat May 07, 2016 6:39 pm

Hello,

I'm in the UK near Leeds in North England, I've seen Professor Cook at St. James Hospital in Leeds for my smoldering myeloma. I also believe Newcastle is another good centre as well.

Hope this helps a little,
Helen

[Jonah]

Re: Multiple myeloma specialists in the UK

by Jonah on Sat May 07, 2016 9:59 pm

This thread has a list of leading multiple myeloma specialists in most of the major countries around the world:

https://myelomabeacon.org/forum/international-myeloma-working-group-imwg-members-t3514.html

There are many that are listed who are based in the UK.

[Spanish Mary]

Re: Multiple myeloma specialists in the UK

by Spanish Mary on Sun May 08, 2016 6:15 am

Thank you Helen and Jonah. I knew the list existed but couldn't lay my hands on it. Much appreciated