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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Multiple myeloma / MGUS specialists in South Florida?

by meeshymeesh on Wed Dec 28, 2011 3:58 pm

Who are the myeloma and MGUS specialists in the Fort Lauderdale, Weston, Miami, Copper City area of South Florida?

meeshymeesh
Name: Michelle
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2009
Age at diagnosis: 40

Re: Multiple myeloma / MGUS specialists in South Florida?

by Dr. Adam Cohen on Fri Dec 30, 2011 11:15 pm

I would suggest Dr. James Hoffman at Cleveland Clinic in Weston.



Moderator's note: Dr. James Hoffman moved to the Sylvester Cancer Center at the University of Miami in 2013.

Dr. Adam Cohen
Name: Adam D. Cohen, M.D.
Beacon Medical Advisor

Re: Multiple myeloma / MGUS specialists in South Florida?

by meeshymeesh on Mon Jan 02, 2012 3:45 pm

Thank you so much. Dr. Hoffman is on my insurance list and a stones throw from where I live.

Michelle

meeshymeesh
Name: Michelle
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2009
Age at diagnosis: 40

Re: Multiple myeloma / MGUS specialists in South Florida?

by Lisa Arneaud on Sat Mar 22, 2014 9:14 am

Thanks for the recommendation Dr. Cohen.

Lisa Arneaud

Re: Multiple myeloma / MGUS specialists in South Florida?

by SoFla on Sat May 05, 2018 9:32 pm

I was diagnosed a few weeks ago. My internist referred me to an endo­crinologist in her practice because she didn’t like my recent bone density test. Not that the numbers had changed, but why did I have osteo­porosis? I went to her and the endocrinologist ordered labs, allegedly checking for celiac disease (not found); however, possible M-protein present, 0.2 g/dL, abnormal protein band 1; gamma globulin 0.7 consistent with hypo­gamma­globu­linemia. All other lab values were in normal range.

So endocrinologist said go to hematologist / oncologist, who poo pooed my condition, calling it an abnormal variant, come back next year. I said I needed serum free light chain labs, at the very least. He said my kidneys are fine, don’t worry.

I did have the serum free light chain test and it was normal.

When I said I couldn’t just wait and see, he said I could take green tea extract, eat animal protein and butter (I rarely eat red meat and never eat butter). I do now. Also taking curcumin / turmeric. My liver was slightly inflamed from the statins I was on, but have since stopped.

Okay, I know I’m tightly wound on an average day, and I’m obsessed with my condition now. My father passed away from acute myelogenous leukemia. I need a second opinion, maybe repeat labs.

Any other suggestions for a myeloma specialist / MGUS doctor in Ft. Lauderdale or anywhere in South Florida?

SoFla
Name: SoFla
Who do you know with myeloma?: Self - MGUS
When were you/they diagnosed?: 3 weeks ago
Age at diagnosis: 66

Re: Multiple myeloma / MGUS specialists in South Florida?

by Dr. James Hoffman on Mon May 07, 2018 10:51 am

I'd be happy to see you and sort things out. Also, if you call, we can give you some names of local hematology-oncology doctors who are informed and competent about myeloma and related conditions.

Dr. James Hoffman
Name: James E. Hoffman, M.D.
Beacon Medical Advisor

Re: Multiple myeloma / MGUS specialists in South Florida?

by SoFla on Thu May 10, 2018 10:23 pm

Thanks, Dr. Hoffman. I will call your office tomorrow.

SoFla
Name: SoFla
Who do you know with myeloma?: Self - MGUS
When were you/they diagnosed?: 3 weeks ago
Age at diagnosis: 66


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