Hello all,
I am new to the group, and I have been reading through some of the topics, I was diagnosed with smoldering multiple myeloma. I have had back pain for over 10 years. In April both my hips came out of their sockets, which made me seek medical advice. Up until then, I was "a get on with it" type
I was like a rabbit caught in headlights when seeing my specialist for the smoldering multiple myeloma diagnosis. Everything he said went straight over my head. I find all your posts so informative. I attend my doctor appointments on my own, so do not have anyone to talk to about this. I just want to say a big thank you for sharing your experiences. It is helping me no end. x
Forums
Re: Multiple myeloma bone pain - what to look for?
When there is myeloma lesion-related bone pain, is it something that is experienced every day?
I have mild pains that come and go, plus bone pain is a side effect of one of my medications, so I'm not sure if that's the main culprit. At diagnosis, I had three lucencies on the top of my skull, and prior to my stem cell transplant in May, testing showed a small spot on my right humerus, so I'm not sure how quickly these lesions and associated pain can come on.
The current pains that come and go are mild and are in my lower back where it meets my hips and the spot between my shoulder blade and spine (feels more muscular than skeletal). It doesn't affect my ability to do anything, and I exercise with no pain. I have mentioned this (and in more detail) to my oncologist, and he hasn't expressed a concern or felt need for another scan.
I have mild pains that come and go, plus bone pain is a side effect of one of my medications, so I'm not sure if that's the main culprit. At diagnosis, I had three lucencies on the top of my skull, and prior to my stem cell transplant in May, testing showed a small spot on my right humerus, so I'm not sure how quickly these lesions and associated pain can come on.
The current pains that come and go are mild and are in my lower back where it meets my hips and the spot between my shoulder blade and spine (feels more muscular than skeletal). It doesn't affect my ability to do anything, and I exercise with no pain. I have mentioned this (and in more detail) to my oncologist, and he hasn't expressed a concern or felt need for another scan.
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stefania888 - Name: Stephanie
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: July 2016
- Age at diagnosis: 30
Re: Multiple myeloma bone pain - what to look for?
stefania888 asked:
It's hard to say. Myeloma is a very individual illness. My dad is never without some discomfort in his bag and legs despite surgery, radiation, and drug therapy for his multiple myeloma.
When there is myeloma lesion-related bone pain, is it something that is experienced every day?
It's hard to say. Myeloma is a very individual illness. My dad is never without some discomfort in his bag and legs despite surgery, radiation, and drug therapy for his multiple myeloma.
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: Multiple myeloma bone pain - what to look for?
Hi Folks,
I was diagnosed with MGUS two years ago. I had a bone marrow biopsy last week and I am awaiting contact from my doctor about the results. I suspect that I am going to need to have the procedure again due to an insufficient amount of marrow being pulled to analyze.
I'm wondering if anyone can speak to what bone pain feels like. I think I've asked this before, but is it a safe assumption to go with that if no bone damage was detected on the full body x ray, and if my calcium level is fine, that I am probably not dealing with "bone pain"?
I feel occasional aches and here and there, nothing constant. I definitely have peripheral neuropathy. My doctors are reluctant to link MGUS with my peripheral neuropathy at this point.
Thank you everybody.
Jon
I was diagnosed with MGUS two years ago. I had a bone marrow biopsy last week and I am awaiting contact from my doctor about the results. I suspect that I am going to need to have the procedure again due to an insufficient amount of marrow being pulled to analyze.
I'm wondering if anyone can speak to what bone pain feels like. I think I've asked this before, but is it a safe assumption to go with that if no bone damage was detected on the full body x ray, and if my calcium level is fine, that I am probably not dealing with "bone pain"?
I feel occasional aches and here and there, nothing constant. I definitely have peripheral neuropathy. My doctors are reluctant to link MGUS with my peripheral neuropathy at this point.
Thank you everybody.
Jon
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ricejon - Name: Jon
- Who do you know with myeloma?: mgus (self)
- When were you/they diagnosed?: 2016
- Age at diagnosis: 47
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