One woman's point of view. I'm 61, always enjoyed sex. It was a fun part of my marriage. However, since menopause, I've lost my libido. Flat lined. For 7 years now, I've been experiencing guilt, shame and fear that my husband, who's younger by 6 years, would leave me.
I wouldn't wish a loss of libido on anyone, but I'll be relieved if my hubby loses his libido.. There's more to a relationship then sex, especially as we age. Someone to talk to and to share a life with. Please don't pass up on having someone in your life because your not 18 any longer.
Forums
-
wekebu - Name: Wendy
- Who do you know with myeloma?: Hubby
- When were you/they diagnosed?: Jan 2016
- Age at diagnosis: 55
Re: Multiple myeloma and libido
Hi JMan,
Wish I could give you an answer, but unfortunately I can't, except to ask, are you on any other drugs or have other medical conditions that could be contributing to your erectile dysfunction? For example, some meds for high blood pressure or depression can be a factor, as can conditions like depression, diabetes, vascular disease, etc. Just thought I'd mention this.
Ted
Wish I could give you an answer, but unfortunately I can't, except to ask, are you on any other drugs or have other medical conditions that could be contributing to your erectile dysfunction? For example, some meds for high blood pressure or depression can be a factor, as can conditions like depression, diabetes, vascular disease, etc. Just thought I'd mention this.
Ted
-
Ted Kan - Who do you know with myeloma?: Self
- When were you/they diagnosed?: December 2014
- Age at diagnosis: 75
Re: Multiple myeloma and libido
So as a woman, I too no longer have any interest. I'm not even interested in masturbation. I didn't have these issues before my stem cell transplant. I'm guessing for me it's a combination of the transplant, drugs, and how I perceive myself.
My poor husband knows I am not interested and I try to reassure him it's not him, but it still bothers him. I do my best to pretend interest, but I'm just wishing he would lose interest. At least being I am a woman I am capable of having sex, but it's just to keep my husband happy.
My poor husband knows I am not interested and I try to reassure him it's not him, but it still bothers him. I do my best to pretend interest, but I'm just wishing he would lose interest. At least being I am a woman I am capable of having sex, but it's just to keep my husband happy.
-
kjpoppit - Name: Kim Nelson
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Sept. 19th, 2013
- Age at diagnosis: 47
Re: Multiple myeloma and libido
My wife had issues after medical issues. She started using a Estring, which is localized hormones. A couple weeks after starting that she felt like she was 40 again. Don't think they make any drug to get us back to our 20's. 
-
JBarnes - Name: Jerry Barnes
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Aug 17, 2012
- Age at diagnosis: 54
Re: Multiple myeloma and libido
My diagnosis was end of August 2015 and prior to that intimacy was very frequent and basically normal. Then it was as if someone flipped a switch and the desire and ability was gone. At 80 years for both of us, our sex life was very active, so the diminishing of that has been a matter of great concern.
Others have asked if Cialis helps. Yes it does, but I am sure responses are very individualized. In my case, it was prescribed prior to multiple myeloma diagnosis several years ago, since I had a focal laser ablation to get rid of prostate cancer. I have continued to use it.
However, it seems like the other symptoms / characteristics of multiple myeloma get in the way, such as muscles and bones hurting, lack of stamina and associated fatigue, etc. Both of us discuss this occurrence freely and continue to search for solutions to re-energize and renew this very basic component of life together. A partner's understanding is crucial to the whole process, to be sure, and I am fortunate to have that.
This whole topic, while it may be difficult for some, should be discussed openly so that some may find assistance in understanding, if not in fulfillment. It is good to know that the condition is not "just me" but extends beyond to others. And if there is any comfort in numbers, well -- let the numbers speak for themselves. It just may be that someone out there has a solution or even a partial answer to the question of "what do we do next?" in order to continue a good quality of life for not just ourselves, but also for our partners, which is even more important.
Others have asked if Cialis helps. Yes it does, but I am sure responses are very individualized. In my case, it was prescribed prior to multiple myeloma diagnosis several years ago, since I had a focal laser ablation to get rid of prostate cancer. I have continued to use it.
However, it seems like the other symptoms / characteristics of multiple myeloma get in the way, such as muscles and bones hurting, lack of stamina and associated fatigue, etc. Both of us discuss this occurrence freely and continue to search for solutions to re-energize and renew this very basic component of life together. A partner's understanding is crucial to the whole process, to be sure, and I am fortunate to have that.
This whole topic, while it may be difficult for some, should be discussed openly so that some may find assistance in understanding, if not in fulfillment. It is good to know that the condition is not "just me" but extends beyond to others. And if there is any comfort in numbers, well -- let the numbers speak for themselves. It just may be that someone out there has a solution or even a partial answer to the question of "what do we do next?" in order to continue a good quality of life for not just ourselves, but also for our partners, which is even more important.
-
cturner - Name: Carrol A. Turner
- Who do you know with myeloma?: George Villiere and self
- When were you/they diagnosed?: August 2015
- Age at diagnosis: 79
Re: Multiple myeloma and libido
I posted earlier (about 15 months ago) about loosing my libido and having ED. I agree with the previous poster that these problems should be discussed openly and freely.
Since I have gotten myeloma, my desire had disappeared almost totally. I am very glad to report now that I have gotten some of it back – perhaps because my myeloma is better than it was, even if I am not in remission. Today I had a physical with my family doctor and got a prescription for Revatio, which has the same active ingredient (sildenafil) as Viagra. I will try that and see how it goes.
I have been using a vacuum pump at times and it works, but it it is quite a bit of trouble to use and sometimes causes discomfort. I am very interested in the injections and penis insertions like Muse (alprostadil) or Edex, but everything I have read says don't use it if you have myeloma. It sounds wonderful how well it works. I would like to hear from anyone that is using it here. I sure don't want do anything that would make my myeloma worse.
Thanks for any experience you have had with alprostadil.
Since I have gotten myeloma, my desire had disappeared almost totally. I am very glad to report now that I have gotten some of it back – perhaps because my myeloma is better than it was, even if I am not in remission. Today I had a physical with my family doctor and got a prescription for Revatio, which has the same active ingredient (sildenafil) as Viagra. I will try that and see how it goes.
I have been using a vacuum pump at times and it works, but it it is quite a bit of trouble to use and sometimes causes discomfort. I am very interested in the injections and penis insertions like Muse (alprostadil) or Edex, but everything I have read says don't use it if you have myeloma. It sounds wonderful how well it works. I would like to hear from anyone that is using it here. I sure don't want do anything that would make my myeloma worse.
Thanks for any experience you have had with alprostadil.
-
JMan
16 posts
• Page 2 of 2 • 1, 2