Multibilly - I rue that I was not forewarned. It wasn't until I was gowned up and getting on the table that I was told I would have a contrast dye. I asked them what it was and they explained what it did, not the name of the contrast agent. I had never thought to ask prior to the test.
Right now I am frustrated because while I am aware of my MGUS, it seems to be stable and my specialist has placed me on once yearly visits; he has gauged my MGUS to be very low risk of progression.
Yet, I still have back, leg and foot pain in addition to neuropathy, which is what got me the neurologist then hem/onc in the first place. But I am no closer to relief from my pain/neuropathy.
I took Neurontin (gabapentin) for about 1 1/2 years and it did a really good job, but my brain turned to pudding and I couldn't function, so back to the pain / neuropathy.
Didn't mean to go on there, I'm just in a current state of extreme fatigue and moderate pain. I wish I could find one doctor who could guide me through my health care without needless tests.
Forums
-
Toni - Name: Toni
- Who do you know with myeloma?: self - MGUS
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 51
Re: Multiple MRIs in one session?
Toni,
Please do not think you need to live in constant pain / neuropathy. Ask about trying Lyrica! It worked wonders for me when Neurontin did zero. Copay assist coupon on website.
Best! BN
Please do not think you need to live in constant pain / neuropathy. Ask about trying Lyrica! It worked wonders for me when Neurontin did zero. Copay assist coupon on website.
Best! BN
-
Bar-none - Who do you know with myeloma?: Me
- When were you/they diagnosed?: 3/14
Re: Multiple MRIs in one session?
Bar-None,
Doesn't Lyrica have the same side effects as Neurontin (gabapentin)? I couldn't think, I couldn't remember, I drove through red lights ...
Doesn't Lyrica have the same side effects as Neurontin (gabapentin)? I couldn't think, I couldn't remember, I drove through red lights ...
-
Toni - Name: Toni
- Who do you know with myeloma?: self - MGUS
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 51
Re: Multiple MRIs in one session?
Hi Multibilly.
I know you do your research, so I am very glad you mentioned
M Fulciniti et al, "Gadolinium Containing Contrast Agent Promotes Multiple Myeloma Cell Growth: Implication for Clinical Use of MRI in Myeloma," ASH 2009 annual meeting, abstract 1809 (abstract, poster)
I had read about Gadolinium and had read what you mentioned - that it actually promotes multiple myeloma cellular activity as you said.
Hi Toni.My neuropathy has gradually improved. Hot water bothered my feet and I always noticed neuropathy the most at night.
I hope you can find something to help.
Cathy
I know you do your research, so I am very glad you mentioned
M Fulciniti et al, "Gadolinium Containing Contrast Agent Promotes Multiple Myeloma Cell Growth: Implication for Clinical Use of MRI in Myeloma," ASH 2009 annual meeting, abstract 1809 (abstract, poster)
I had read about Gadolinium and had read what you mentioned - that it actually promotes multiple myeloma cellular activity as you said.
Hi Toni.My neuropathy has gradually improved. Hot water bothered my feet and I always noticed neuropathy the most at night.
I hope you can find something to help.
Cathy
-
antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
14 posts
• Page 2 of 2 • 1, 2