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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Mouth/Tongue Sensitivity

by kullybunnny1 on Sun Apr 09, 2017 12:06 pm

I've been experiencing sensitivity to both my tongue and occasionally the interior of the mouth for the last 6 months. Since my ASCT 3 years ago, I've been sensitive to spicy foods however recently I'm challenged by something as simple as blue cheese dressing. At its worse, I can barely eat a cookie. I've also been told by my dentist that my tooth enamel seems to be breaking down so I don't know if the two are connected. I've had thoughts that perhaps my Revlimid maintenance (10mg daily) is effecting the nerves in my tongue but I just can't get an answer from my specialist, local oncologist or my PCM.

Thoughts?

Kully

kullybunnny1
Name: Kully
Who do you know with myeloma?: me
When were you/they diagnosed?: August 2013
Age at diagnosis: 48

Re: Mouth/Tongue Sensitivity

by Munjid on Sun Apr 09, 2017 1:54 pm

Please have your doctor check your folic acid and vitamin B12 levels. Vitamin B deficiency can cause a painful tongue.

Furthermore, discuss amyloidosis with your doctor.

All the best,
Munjid Al Mousa

Munjid


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