Good day to all!
My mother, who lives in the Philippines, was newly diagnosed with multiple myeloma November 14, 2016 at the age of 55. So shocked after hearing that this has no cure yet. She started dexamethasone and thalidomide. We are still waiting for a result that could tell the stage. Hoping that we could proceed soon to Velcade.
I am her daughter 21 years old. A reviewee for the upcoming CPA baord exam this May 2017. Upon knowing that my mom has multiple myeloma, I just don't know what to do. This cancer is a "never heard" battle for us. And so, i did a lot of research regarding her case until i saw this Myeloma Beacon – a very powerful way to connect with other patients around the globe.
As a newbie here, I want to thank all those who posted their journey. It heals our souls more than any medicine could do. Your positivity and faith seems so enough to continue on fighting this cancer daily.
As a devotional book from "Streams in the Desert" goes:
"Are there some people in your circle of friends to whom you naturally go in times of trial s and sorrow - people who seem to say just the right words and who give you the very counsel you desire? If so, you may not realize the high cost they have paid to become so skilled at binding up your gaping wounds and drying your tears. And yet if you are going to investigate their past, you would find they have suffered more than most other people."
To all myeloma patients out there, thank you for being so determined to get everything you can from your struggles. I know it blesses you, and just so you know, as for me, your journey of faith gives me inspiration in this life.
I know, I believe we can all do this!
Praying that by 2017, we will have a cure.
Staying positive,
Febie
Forums
5 posts
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Febie0021 - Name: Febie Gacusan
- Who do you know with myeloma?: Mother
- When were you/they diagnosed?: November 14 2016
- Age at diagnosis: 55
Re: Mother in Philippines diagnosed with multiple myeloma
Hi Febe and mom,
I have been thinking about you both and wondering how things are going there. Have you had any more news from doctors? Did your mom have a bone marrow test? That's often a good indicator of the stage of the myeloma if you aren't symptomatic.
I have been home for 3 weeks now and still not 100% but definitely making progress. Its strange that for the same disease everyone seems to.have different symptoms and recovery progress.
You said in your post that there is no cure yet and you are right. But ... there is the enormous probability of going back to pre-myeloma and being normal again for a very long time. So don't give up hope. That's what will get you through.
I have 2 children. My son lives near me, but his wife's mom has been ill, and so that's kept him busy. My daughter lives in the UK and has a 3-month old baby girl. So its been really hard for them to cope with their mom being ill and having treatment, and I can imagine you are experiencing similar feelings. I hope you have other family friends or partner that can walk this route with you.
From my side as a mom, it's been really hard to accept that at the moment I am not able to do all the usual things that I previously did. Even little things like cleaning and ironing. If your mom's anything like me, she will find it frustrating. So encourage her that it's temporary and will get better.
Hang in and keep encouraging your mom.
I have been thinking about you both and wondering how things are going there. Have you had any more news from doctors? Did your mom have a bone marrow test? That's often a good indicator of the stage of the myeloma if you aren't symptomatic.
I have been home for 3 weeks now and still not 100% but definitely making progress. Its strange that for the same disease everyone seems to.have different symptoms and recovery progress.
You said in your post that there is no cure yet and you are right. But ... there is the enormous probability of going back to pre-myeloma and being normal again for a very long time. So don't give up hope. That's what will get you through.
I have 2 children. My son lives near me, but his wife's mom has been ill, and so that's kept him busy. My daughter lives in the UK and has a 3-month old baby girl. So its been really hard for them to cope with their mom being ill and having treatment, and I can imagine you are experiencing similar feelings. I hope you have other family friends or partner that can walk this route with you.
From my side as a mom, it's been really hard to accept that at the moment I am not able to do all the usual things that I previously did. Even little things like cleaning and ironing. If your mom's anything like me, she will find it frustrating. So encourage her that it's temporary and will get better.
Hang in and keep encouraging your mom.
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Barbara SA - Name: Barbara SA
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: November 2015
- Age at diagnosis: 55
Re: Mother in Philippines diagnosed with multiple myeloma
Hi Febie,
I just read your message, I'm also from the Philippines and same like you my mother was also diagnosed multiple myeloma (August 14, 2017). Hope everything doing well with your Mom. Keep in touch.
Regards,
Jenssen
I just read your message, I'm also from the Philippines and same like you my mother was also diagnosed multiple myeloma (August 14, 2017). Hope everything doing well with your Mom. Keep in touch.
Regards,
Jenssen
Re: Mother in Philippines diagnosed with multiple myeloma
Hi,
My mother is in the Philippines and she is in her mid 60's. She was taken to the hospital two weeks ago and she is still there until today when I post this message. It is so hard for me and my family to hear and accept the reality that the doctors diagnosed she had a disease called multiple myeloma.
We don't know that she had this disease for long. Every time when I talked to her on the phone she always said to me she is fine and good. She has some fever, but it will go away. But this month my brother found her lying on the floor. She could barely move with a very high fever. They took her to the clinic in our town, then transferred her to the hospital in the city. That's where they found she had multiple myeloma.
It is so shocking for me and my family. We did not expect that she would get this kind of disease, For now she is alert but so weak. Her bone hurts she told me last night. I am so sorry for my mother. I hope they can help and make her get better and survive for many years.
rina
My mother is in the Philippines and she is in her mid 60's. She was taken to the hospital two weeks ago and she is still there until today when I post this message. It is so hard for me and my family to hear and accept the reality that the doctors diagnosed she had a disease called multiple myeloma.
We don't know that she had this disease for long. Every time when I talked to her on the phone she always said to me she is fine and good. She has some fever, but it will go away. But this month my brother found her lying on the floor. She could barely move with a very high fever. They took her to the clinic in our town, then transferred her to the hospital in the city. That's where they found she had multiple myeloma.
It is so shocking for me and my family. We did not expect that she would get this kind of disease, For now she is alert but so weak. Her bone hurts she told me last night. I am so sorry for my mother. I hope they can help and make her get better and survive for many years.
rina
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rina
Re: Mother in Philippines diagnosed with multiple myeloma
Hello Rina, Welcome to the forum, although I am sorry that your mother is so ill with myeloma. This bone marrow cancer is not really curable, but is treatable. Some patients may recover from the initial diagnosis and do well after that.
Do you know what treatments are being given to your mother, and is she being seen by a hematological oncologist? You can find links to discussions about lots of different treatments, and lots of different potential treatment side effects, in this post, which is pinned at the top of the "Treatments & Side Effects" section of the forum.
Do you know what treatments are being given to your mother, and is she being seen by a hematological oncologist? You can find links to discussions about lots of different treatments, and lots of different potential treatment side effects, in this post, which is pinned at the top of the "Treatments & Side Effects" section of the forum.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
5 posts
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