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Questions and discussion about monoclonal gammopathy of undetermined significance (i.e., diagnosis, risk of progression, living with the disease, etc.)

Re: MGUS with lots of symptoms - is that normal?

by chrismcd99 on Mon Nov 21, 2016 7:29 am

Hi.

My name is Chris. I am a newbie here. I was diagnosed with MGUS 3 wks ago. Back in 2012, I had an unexplained deep vein thrombosis while in the hospital. With that, they found I had anemia. Later that year I developed pustular psoriasis, which is rare.

I was just wondering if I might have had MGUS back then and tests weren't run that would show it. My neurologist I am seeing now is the one that found my M spike. I started seeing her due to balance / coordination issues. I kept falling to the side when walking. She ran blood / urine tests the first visit. I asked her if she was looking for anything in particular and she said bone cancer. I really didn't think anything of it.

I went back in October for repeat of blood / urine test and thats when I found out about the M-spike and IgG light chain. My number aren't high. I don't understand a lot of them. I go to see an on­colo­gist today for the first time. Hopefully will get a lot of my questions answered there. Any input from others that might have had the same experience with other unexplained illnesses would be appreciated

Have a good day and Thanksgiving.

Chris

chrismcd99
Name: chrismcd99
Who do you know with myeloma?: myself
Age at diagnosis: 57

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