Last year, I was told I have MGUS.
I go to the hematologist every three months. I have the worse pain in my lower back and right leg. It's terribly excruciating. I have had the bone scan (everything fine), had the bone marrow biopsy from hips (I assume that's why I go to the doctor every 3 months). Now I'm experiencing horrible pain in the left side of my upper abdomen.
Neurologist said my spleen is enlarged. Mind you, I only have 1 kidney, and its function is declining. These doctors are telling me that it's not common to have any symptoms from MGUS.
Is it not possible that some people may experience symptoms, i.e. pain in legs? The neurologist said something is going on because the nerves in my legs aren't normal.
It seems as if the doctors are hesitant to diagnosis me. With anything. Meanwhile I suffer with severe fatigue, pain in legs and abdomen. I feel like the someone is missing something like they aren't looking close enough at my test results. It's frustrating because if it weren't something going on, would they have me evaluated every three months?
I'm at my wits end. Has anyone else experienced this where you have MGUS, but all test come back ok and you experience symptoms.
I have also had to take weekly treatments because my IgG was very low, but they stopped treatment a few months ago due to kidney function decline.
If anyone has any feedback please respond. Thank you
For reference, I see a primary physician, neurologist, pain doctor, chiropractor, acupuncturist, hematologist, and nephrologist.
And I have seen an expert that only handles multiple myeloma patients (told me everything was stable 4 months ago).
Forums
Re: Have MGUS, but experiencing lots of pain
Hi Ash,
For whatever consolation it's worth, I have MGUS (IgG kappa) and am at my wits' end, too. I was diagnosed six years ago, after frequent respiratory/sinus infections and mysterious rashes. I also had one previously elevated serum protein level (very slight). My internist ran an SPEP and referred me to a local hematologist. Bone marrow biopsy with FISH, etc. confirmed MGUS. Told not to worry about it. Have generally followed up, like you, every 3-4 months, because of other medical complications.
Since then, my IgA and IgM levels are suppressed and free light chains/ratio are abnormal. I started having severe pain in both lower legs in 2010 and terrible spinal pain in 2011. I've had injuries from running and other sports but this pain was new. X-rays and MRI's confirmed no lesions or anything, however. Just degenerative arthritis. Another MRI recently confirmed this again, but the pain is very intense at times. (I'm in my 40s and this osteoarthritis runs in my family, along with some immune-related disorders.)
I also developed recurring abdominal pain two years ago and strange numbness in my legs and feet. An abdominal CT scan and full neurological workup including MRI and nerve conduction studies were unremarkable. A physician suggested it was an iatrogenic effect from medications I used prior to an unrelated surgery. Still get both symptoms occasionally, but not like before. But, like you, no definitive answers.
Shortly after, I was diagnosed with very low vitamin D levels, for which I take 500IU D3/daily. My levels are regularly checked and remain normal, yet I'm unsure if this dosage may present any risks. Have received conflicting answers, told to continue as is, along with daily fish oil and a multivitamin. I run everything through my hematologist now and ultimately defer to his expertise. He is at a respected university/comprehensive cancer center, yet he understands my frustrations.
I was initially diagnosed BECAUSE of symptoms and have had anomalous problems since. Recently these also include low ferritin levels (very low normal range), slightly high bilirubin, continuing allergies/histamine reactions and low pneumococcal antibodies. Like your doctor, my hematologist maintains that "something is going on," but feels adamant it's not generally related to MGUS.
I have ongoing hyperlipidemia as well that I intend to treat again soon with a statin or fibrate. A diet trial alone just isn't working. (Once again, different suggestions from different doctors, as with my low ferritin.) Just yesterday I read about connections between monoclonal gammopathies and hyperlipidemia. Perhaps someone might be able to comment on that connection further.
I was just told I need a pnuemo vaccine before winter, yet someone else cautioned use of any live vaccine with MGUS and suppressed immunoglobulins. I"ve received flu shots for 12+ years because of asthma. I'd prefer not to get sick but don't know what to do. It's like talking to both of your parents and getting different answers. Hence my wits' end ... (One doctor recently told me to " listen to what mom says"; unfortunately, he couldn't identify who mom is in this scenario ... )
Without boring you with more of my own history, I think the answer to your question about MGUS patients experiencing symptoms is " yes." However, I don't know for certain if many (or any) of my symptoms are in fact MGUS-related or just a coincidence. I immediately go there, and my doctors tend to red-flag anything out of the ordinary. My hunch as a patient is that the answer can be both MGUS and coincidental for some of us. I have read hundreds of medical journal articles and studies, but I am certainly no expert. Regardless, it's very frustrating...
You mention doctors are hesitant with diagnoses. For me, doctors have alternately been both hesitant and quick to diagnose my numerous issues. We've been both right and wrong at times, but always with good intentions. I've relocated twice since my MGUS diagnosis and have had so many opposing opinions I could write a book. Like you, it's complicated. I've had two more bone marrow biopsies since my diagnosis (I do have t(11,14) ) including one with a specialist at a very well-known myeloma facility.. (He's very aware of my medical nuances and tells me that I have a low risk of progression). However, we're stuck about some of my other symptoms.
I've tried to become more educated and am familiar with risk-stratification models and the 2010 MGUS consensus perspectives. Yet in my case, there remains no consensus about my myriad symptoms. Like you, the back and leg pain is very intense at times. Not always, but it really hurts most days.
I would love to have more solutions and I feel, like you, that "someone is missing something." Doctors are often so constrained by time, insurance, communication with other outside doctors and other factors today that it is often very difficult to take a comprehensive history and connect all of the dots, especially in one sitting. However, difficult cases require insightful and very focused approaches, and we as patients deserve that. We must be our own best advocates at times. It isn't easy and can be so frustrating as a patient, and I believe the stress from all of this has had a more profound effect on me than some of the symptoms themselves.
I don't have the time or resources to travel the globe seeing unlimited specialists. However, I am planning on getting an opinion from one other MGUS specialist (just to see if these continuing puzzle pieces might somehow fit together in a new light). I hope you can soon find some solutions yourself.
Wow, I didn't plan on such an essay here, but I feel like we're absolutely only human to ask these questions and to feel overwhelmed and frustrated at times. Medicine, and myeloma-related treatment/research, has made huge strides in recent years. Yet, as with many medical problems, sometimes there are more questions than answers. Even with really great physicians.
For now, I am trying to get myself to regularly eat healthier, exercise more, and take control of those things controllable. And to be a bit more conservative in how I approach treating any medical problems, from a risks vs. benefits angle. Nobody wants to create new, avoidable problems that are worse than the original. My pre-operative paresthesia and abdominal pain was a learning lesson for me. Sometimes, when we hear proverbial 'hoofbeats,' it is in fact 'zebras.' But often it's just 'horses.' I hope for 'horses' with you ...
I'm sorry it's such a difficult time for you. Good luck, and I hope you find some helpful solutions and feedback from others...
For whatever consolation it's worth, I have MGUS (IgG kappa) and am at my wits' end, too. I was diagnosed six years ago, after frequent respiratory/sinus infections and mysterious rashes. I also had one previously elevated serum protein level (very slight). My internist ran an SPEP and referred me to a local hematologist. Bone marrow biopsy with FISH, etc. confirmed MGUS. Told not to worry about it. Have generally followed up, like you, every 3-4 months, because of other medical complications.
Since then, my IgA and IgM levels are suppressed and free light chains/ratio are abnormal. I started having severe pain in both lower legs in 2010 and terrible spinal pain in 2011. I've had injuries from running and other sports but this pain was new. X-rays and MRI's confirmed no lesions or anything, however. Just degenerative arthritis. Another MRI recently confirmed this again, but the pain is very intense at times. (I'm in my 40s and this osteoarthritis runs in my family, along with some immune-related disorders.)
I also developed recurring abdominal pain two years ago and strange numbness in my legs and feet. An abdominal CT scan and full neurological workup including MRI and nerve conduction studies were unremarkable. A physician suggested it was an iatrogenic effect from medications I used prior to an unrelated surgery. Still get both symptoms occasionally, but not like before. But, like you, no definitive answers.
Shortly after, I was diagnosed with very low vitamin D levels, for which I take 500IU D3/daily. My levels are regularly checked and remain normal, yet I'm unsure if this dosage may present any risks. Have received conflicting answers, told to continue as is, along with daily fish oil and a multivitamin. I run everything through my hematologist now and ultimately defer to his expertise. He is at a respected university/comprehensive cancer center, yet he understands my frustrations.
I was initially diagnosed BECAUSE of symptoms and have had anomalous problems since. Recently these also include low ferritin levels (very low normal range), slightly high bilirubin, continuing allergies/histamine reactions and low pneumococcal antibodies. Like your doctor, my hematologist maintains that "something is going on," but feels adamant it's not generally related to MGUS.
I have ongoing hyperlipidemia as well that I intend to treat again soon with a statin or fibrate. A diet trial alone just isn't working. (Once again, different suggestions from different doctors, as with my low ferritin.) Just yesterday I read about connections between monoclonal gammopathies and hyperlipidemia. Perhaps someone might be able to comment on that connection further.
I was just told I need a pnuemo vaccine before winter, yet someone else cautioned use of any live vaccine with MGUS and suppressed immunoglobulins. I"ve received flu shots for 12+ years because of asthma. I'd prefer not to get sick but don't know what to do. It's like talking to both of your parents and getting different answers. Hence my wits' end ... (One doctor recently told me to " listen to what mom says"; unfortunately, he couldn't identify who mom is in this scenario ... )
Without boring you with more of my own history, I think the answer to your question about MGUS patients experiencing symptoms is " yes." However, I don't know for certain if many (or any) of my symptoms are in fact MGUS-related or just a coincidence. I immediately go there, and my doctors tend to red-flag anything out of the ordinary. My hunch as a patient is that the answer can be both MGUS and coincidental for some of us. I have read hundreds of medical journal articles and studies, but I am certainly no expert. Regardless, it's very frustrating...
You mention doctors are hesitant with diagnoses. For me, doctors have alternately been both hesitant and quick to diagnose my numerous issues. We've been both right and wrong at times, but always with good intentions. I've relocated twice since my MGUS diagnosis and have had so many opposing opinions I could write a book. Like you, it's complicated. I've had two more bone marrow biopsies since my diagnosis (I do have t(11,14) ) including one with a specialist at a very well-known myeloma facility.. (He's very aware of my medical nuances and tells me that I have a low risk of progression). However, we're stuck about some of my other symptoms.
I've tried to become more educated and am familiar with risk-stratification models and the 2010 MGUS consensus perspectives. Yet in my case, there remains no consensus about my myriad symptoms. Like you, the back and leg pain is very intense at times. Not always, but it really hurts most days.
I would love to have more solutions and I feel, like you, that "someone is missing something." Doctors are often so constrained by time, insurance, communication with other outside doctors and other factors today that it is often very difficult to take a comprehensive history and connect all of the dots, especially in one sitting. However, difficult cases require insightful and very focused approaches, and we as patients deserve that. We must be our own best advocates at times. It isn't easy and can be so frustrating as a patient, and I believe the stress from all of this has had a more profound effect on me than some of the symptoms themselves.
I don't have the time or resources to travel the globe seeing unlimited specialists. However, I am planning on getting an opinion from one other MGUS specialist (just to see if these continuing puzzle pieces might somehow fit together in a new light). I hope you can soon find some solutions yourself.
Wow, I didn't plan on such an essay here, but I feel like we're absolutely only human to ask these questions and to feel overwhelmed and frustrated at times. Medicine, and myeloma-related treatment/research, has made huge strides in recent years. Yet, as with many medical problems, sometimes there are more questions than answers. Even with really great physicians.
For now, I am trying to get myself to regularly eat healthier, exercise more, and take control of those things controllable. And to be a bit more conservative in how I approach treating any medical problems, from a risks vs. benefits angle. Nobody wants to create new, avoidable problems that are worse than the original. My pre-operative paresthesia and abdominal pain was a learning lesson for me. Sometimes, when we hear proverbial 'hoofbeats,' it is in fact 'zebras.' But often it's just 'horses.' I hope for 'horses' with you ...
I'm sorry it's such a difficult time for you. Good luck, and I hope you find some helpful solutions and feedback from others...
-
Anonymous
Re: Have MGUS, but experiencing lots of pain
Hello Ash,
With MGUS, I had (and still have) a little tingling.
Do you take drugs that have bad side effects?
Have you tested food intolerances? Sometimes not eating specific foods treats a lot of problems (I do not eat milk products and cheeses, egg white, etc. and my headaches have disappeared).
And are you very stressed? This can greatly influence your general condition.
With MGUS, I had (and still have) a little tingling.
Do you take drugs that have bad side effects?
Have you tested food intolerances? Sometimes not eating specific foods treats a lot of problems (I do not eat milk products and cheeses, egg white, etc. and my headaches have disappeared).
And are you very stressed? This can greatly influence your general condition.
-
Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
Re: Have MGUS, but experiencing lots of pain
GM Jacqueline. Last year they had me on so many drugs it was crazy. Which I decided was doing nothing for me, so I stopped taking. They were saying I had MS.. Which was later diagnosed as an infection that mimicked MS.
I too was experiencing tingling in my hands and feet. It was at my internist suggestion that I begin to eat organic. Stay away from dairy, wheat, gluten and sugar. It was difficult at first, but soon it was smooth sailing. I have since reintroduced the foods back slowly into my diet. And I also begin to take herbal supplements as well, which really helped.
I may be a little stressed now due to the doctors not connecting the dots. Two years ago I went through a similar instances with mis -diagnosis which caused the kidney to be removed. So to have to fight with doctors to be heard is stressful and frustrating.
The tingling in my feet and hands aren't severe as previous years, but the leg pain was so bad on my shin I couldn't drive for months.
Anyway thank you for responding I appreciate it. It helps to have others' experiences with MGUS.
I too was experiencing tingling in my hands and feet. It was at my internist suggestion that I begin to eat organic. Stay away from dairy, wheat, gluten and sugar. It was difficult at first, but soon it was smooth sailing. I have since reintroduced the foods back slowly into my diet. And I also begin to take herbal supplements as well, which really helped.
I may be a little stressed now due to the doctors not connecting the dots. Two years ago I went through a similar instances with mis -diagnosis which caused the kidney to be removed. So to have to fight with doctors to be heard is stressful and frustrating.
The tingling in my feet and hands aren't severe as previous years, but the leg pain was so bad on my shin I couldn't drive for months.
Anyway thank you for responding I appreciate it. It helps to have others' experiences with MGUS.
-
Ash
Re: Have MGUS, but experiencing lots of pain
GM anonymous. I didn't feel like you were writing an essay. I appreciate the feedback. It makes me relieved that I'm not the only one that experiences symptoms. Doctors always say the pain isn't from MGUS. I am going to the hematologist in a few days. So hopefully I will get more info.
I consider myself be aware of things going on in my body before the doctor knows, but I do understand that MGUS can be tricky and it's a waiting game.
I consider myself be aware of things going on in my body before the doctor knows, but I do understand that MGUS can be tricky and it's a waiting game.
-
Ash
Re: Have MGUS, but experiencing lots of pain
Hello,
I was diagnosed w/ MGUS in 2005 after recurring sinus infections. Since then, my symptoms have worsened and I too have seen every specialist available only for them to find nothing accept immune deficiency, osteopenia, and MGUS. I suffer from chronic back pain, leg weakness, restless legs, post exertional malaise, bilateral carpal tunnel, joint pain, and most debilitating - recurrent infection.
I think that considering nothing else was found it is MGUS that is the causative factor in my aches and pains and overall ill feelings. However, I did read an article that suggested immune deficiency causes myeloma, not the other way around, so who knows!
Most important take away is that your not alone with your symptoms or your level of frustration:)
Best
J
I was diagnosed w/ MGUS in 2005 after recurring sinus infections. Since then, my symptoms have worsened and I too have seen every specialist available only for them to find nothing accept immune deficiency, osteopenia, and MGUS. I suffer from chronic back pain, leg weakness, restless legs, post exertional malaise, bilateral carpal tunnel, joint pain, and most debilitating - recurrent infection.
I think that considering nothing else was found it is MGUS that is the causative factor in my aches and pains and overall ill feelings. However, I did read an article that suggested immune deficiency causes myeloma, not the other way around, so who knows!
Most important take away is that your not alone with your symptoms or your level of frustration:)
Best
J
-
jhorner - Name: Magpie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 2013
- Age at diagnosis: 49
Re: Have MGUS, but experiencing lots of pain
If I understand correctly, the immune deficiency would cause myeloma. Although this is only a hypothesis, even if the problem is very complex, we can try things. This is an important, article.
Maybe I'll be writing something stupid, but with all this pain, should you not make of cleaning of your body? Chelate heavy metals, cleanse the liver, the intestines , with the help of a doctor?
I saw a doctor who made me do comprehensive analyses. I had big deficits in vitamin B12 and C, zinc, iodine, glutathio, selenium, etc.
I am taking dietary supplements (liver, intestines, to raise the glutathione, etc) and homeopathy (serotonin, dopamine, GABA, etc.) to restore the land of my organization, to "reset" my body.
I'll know in a month, the next blood test, if it works. This will make 3 months I would have taken food supplements. But the doctor told me it would take time to bring down the gamma peak and get a result ... if I have a result!
I have hope, but also fears and doubts.
If it works, I'll say!
Maybe I'll be writing something stupid, but with all this pain, should you not make of cleaning of your body? Chelate heavy metals, cleanse the liver, the intestines , with the help of a doctor?
I saw a doctor who made me do comprehensive analyses. I had big deficits in vitamin B12 and C, zinc, iodine, glutathio, selenium, etc.
I am taking dietary supplements (liver, intestines, to raise the glutathione, etc) and homeopathy (serotonin, dopamine, GABA, etc.) to restore the land of my organization, to "reset" my body.
I'll know in a month, the next blood test, if it works. This will make 3 months I would have taken food supplements. But the doctor told me it would take time to bring down the gamma peak and get a result ... if I have a result!
I have hope, but also fears and doubts.
If it works, I'll say!
-
Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
Re: Have MGUS, but experiencing lots of pain
Hello all,
I was just diagnosed IgG kappa MGUS this past spring. Paraproteins are not generally tested unless the patient has symptoms. Doctors test for paraproteins in case our symptoms, primarily neuropathy (tingling, numbness) or back pain, are caused by multiple myeloma. Once they discover that we don't have multiple myeloma and we have MGUS, then they cannot attribute these symptoms to anything. So then, as patients, we are left asking, well now what?
One thing I wanted to point out is there are studies which support a correlation with MGUS and other health conditions. Here are some links to reports on these correlated conditions:
Infections:
"Myeloma Precursor Disease MGUS May Increase Risk Of Developing Infections," The Myeloma Beacon, February 22, 2012
Blood clots:
"Patients With Myeloma Precursor Disease MGUS May Have An Increased Risk Of Developing Blood Clots," The Myeloma Beacon, October 29, 2010
Osteoporosis:
"Multiple Myeloma, Smoldering Multiple Myeloma, And MGUS May Be Linked To Osteoporosis," The Myeloma Beacon, May 24, 2010
Developing other Cancers:
"Multiple Myeloma And MGUS Patients May Have An Increased Risk Of Developing Certain Cancers," The Myeloma Beacon, August 10, 2011
I had thought there were studies which showed a correlation between MGUS and peripheral neuropathy, but at this time I cannot find it.
In my case, I have had back and leg pain, tingling and slight numbness in extremities, anemia (low ferritin), extreme fatigue, frequent sinus infections and susceptibility to illness in general. They suspect degenerative disk disease is causing back/leg problems. Also, bone scan indicates osteopenia. I have not gone through menopause yet. Additionally, I have low Vitamin D and no iron reserves in my bone marrow.
What I've listed above seems to be consistent with what a lot of us have. I think that as long as you are seen by a myeloma specialist to follow your MGUS, you've had all three tests to rule out smoldering myeloma or multiple myeloma, and you also see a general physician to deal with other health issues, that is probably the best you can achieve. At least that's what I believe. Knowing now that my vitamin D is still significantly low despite having taken prescription strength for 2 months and then following with a daily regimen and knowing that I have no iron reserves in the bone marrow, is actually enlightening because that means I can take vitamin/mineral supplements to correct those deficiencies.
Still, it would be wonderful to have great health. That is not the hand I was dealt. My neurologist has me on 1,200 mg of gabapentin for pain and I take pramiprexole for PLMD, periodic limb movement disorder, a sleep disorder that causes me to kick my husband all night and wake up exhausted. Treating all these things has made my life easier, but I still am symptomatic.
So, I try to do what I can to take care of my health but also create balance in my life for all aspects of my life. And perhaps as time progresses, they will find out more about MGUS. In the meantime, in very recent years they have come light years in the treatment of multiple myeloma. We are so lucky that if we should progress, we will have a tremendous amount of research and good science to help us.
Still, living with MGUS can be very stressful and consuming. That's what's so very nice about the Myeloma Beacon because we can support each other and also see if there is something perhaps we hadn't considered before.
I was just diagnosed IgG kappa MGUS this past spring. Paraproteins are not generally tested unless the patient has symptoms. Doctors test for paraproteins in case our symptoms, primarily neuropathy (tingling, numbness) or back pain, are caused by multiple myeloma. Once they discover that we don't have multiple myeloma and we have MGUS, then they cannot attribute these symptoms to anything. So then, as patients, we are left asking, well now what?
One thing I wanted to point out is there are studies which support a correlation with MGUS and other health conditions. Here are some links to reports on these correlated conditions:
Infections:
"Myeloma Precursor Disease MGUS May Increase Risk Of Developing Infections," The Myeloma Beacon, February 22, 2012
Blood clots:
"Patients With Myeloma Precursor Disease MGUS May Have An Increased Risk Of Developing Blood Clots," The Myeloma Beacon, October 29, 2010
Osteoporosis:
"Multiple Myeloma, Smoldering Multiple Myeloma, And MGUS May Be Linked To Osteoporosis," The Myeloma Beacon, May 24, 2010
Developing other Cancers:
"Multiple Myeloma And MGUS Patients May Have An Increased Risk Of Developing Certain Cancers," The Myeloma Beacon, August 10, 2011
I had thought there were studies which showed a correlation between MGUS and peripheral neuropathy, but at this time I cannot find it.
In my case, I have had back and leg pain, tingling and slight numbness in extremities, anemia (low ferritin), extreme fatigue, frequent sinus infections and susceptibility to illness in general. They suspect degenerative disk disease is causing back/leg problems. Also, bone scan indicates osteopenia. I have not gone through menopause yet. Additionally, I have low Vitamin D and no iron reserves in my bone marrow.
What I've listed above seems to be consistent with what a lot of us have. I think that as long as you are seen by a myeloma specialist to follow your MGUS, you've had all three tests to rule out smoldering myeloma or multiple myeloma, and you also see a general physician to deal with other health issues, that is probably the best you can achieve. At least that's what I believe. Knowing now that my vitamin D is still significantly low despite having taken prescription strength for 2 months and then following with a daily regimen and knowing that I have no iron reserves in the bone marrow, is actually enlightening because that means I can take vitamin/mineral supplements to correct those deficiencies.
Still, it would be wonderful to have great health. That is not the hand I was dealt. My neurologist has me on 1,200 mg of gabapentin for pain and I take pramiprexole for PLMD, periodic limb movement disorder, a sleep disorder that causes me to kick my husband all night and wake up exhausted. Treating all these things has made my life easier, but I still am symptomatic.
So, I try to do what I can to take care of my health but also create balance in my life for all aspects of my life. And perhaps as time progresses, they will find out more about MGUS. In the meantime, in very recent years they have come light years in the treatment of multiple myeloma. We are so lucky that if we should progress, we will have a tremendous amount of research and good science to help us.
Still, living with MGUS can be very stressful and consuming. That's what's so very nice about the Myeloma Beacon because we can support each other and also see if there is something perhaps we hadn't considered before.
-
Toni - Name: Toni
- Who do you know with myeloma?: self - MGUS
- When were you/they diagnosed?: April 2014
- Age at diagnosis: 51
Re: Have MGUS, but experiencing lots of pain
I was diagnosed with MGUS a little over a year ago. I have recurring all-over pain that is not joint or musculature in nature. It comes and goes. I have what I call my "bad" days. Those are the days where I just hurt. When I hurt, I hurt from head to toe. It hurts to wipe myself when I urinate due to how far I have to reach. Just a brief example of how bad the pain is.
I have disregarded all reports of MGUS being asymptomatic and not pain related. All symptoms point to MGUS because there is no other cause that can be identified. It comes and goes. I have learned to live with my "bad" days.
My primary MD and I have discussed fibromyalgia but I don't believe that is the cause and I don't believe I have that.
I also have fatigue. I typically require one to two nights of 11 to 12 hours of sleep each week to feel rested the rest of the time. Again, no other causes to point to.
I am a medical professional and understand the ins and outs of how the body works.
Just a little input from me.
Hang in there!
Karen
I have disregarded all reports of MGUS being asymptomatic and not pain related. All symptoms point to MGUS because there is no other cause that can be identified. It comes and goes. I have learned to live with my "bad" days.
My primary MD and I have discussed fibromyalgia but I don't believe that is the cause and I don't believe I have that.
I also have fatigue. I typically require one to two nights of 11 to 12 hours of sleep each week to feel rested the rest of the time. Again, no other causes to point to.
I am a medical professional and understand the ins and outs of how the body works.
Just a little input from me.
Hang in there!
Karen
-
Karenage
Re: Have MGUS, but experiencing lots of pain
Hi Toni,
You mention "three tests to rule out multiple myeloma." Can you tell me what the three tests are?
Thanks,
Sarah
You mention "three tests to rule out multiple myeloma." Can you tell me what the three tests are?
Thanks,
Sarah
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