[cgod33]

Re: MGUS - new to forum and in horrible pain

by cgod33 on Fri Mar 13, 2015 2:25 pm

Hi, I also have MGUS. About 5 years ago, I fractured my foot and dealt with severe pain all over my body. As Stewart described, I was diagnosed with CRPS and it does sound a lot of like what you describe. I had a lot of PT, moist heat helped a lot, and hyperbaric oxygen chamber treat­ments helped a lot with my pain. I am at a functioning level with no pain meds now.

I hope you find something that works for you.

Carol.

[cgod33]

Re: MGUS - new to forum and in horrible pain

by cgod33 on Fri Mar 13, 2015 2:27 pm

One other thing ... I had about 5 ganglion nerve blocks done. They helped with my leg pain but did cause a lot of headaches. Luckily they are gone now.

[NStewart]

Re: MGUS - new to forum and in horrible pain

by NStewart on Sat Mar 14, 2015 5:42 pm

Guitar Guy-

I'm so glad that you are back on your pain medication. We all need to be able to function in a pain free, or low level pain that is tolerable, so that we can live our lives.

All the best to you,
Nancy in Phila

[Anonymous]

Re: MGUS - new to forum and in horrible pain

by Anonymous on Sun Apr 26, 2015 6:30 pm

Thanks everyone.

Does anyone know of a good doctor, hos­pi­tal or specialist in the Philadelphia area to help diagnose and treat CRPS?

Rich

[jmulqueen]

Re: MGUS - new to forum and in horrible pain

by jmulqueen on Wed Feb 10, 2016 11:47 pm

Hi Guitarguy,

I recently saw your posts and I am curious how you are doing and if you have tried anything new that has helped.

Your post sounded almost exactly what I am going through; 7 years of progressive – now head-to-toe – constant pain and MGUS, Plan is a trial of Rituxan.

It was good to hear, sorry it is you, that someone else has what I am going through. My pain is literally from top of my head to the bottom of my feet.

Hope you are better.