[Karenhuston]

MGUS, leukemia, and lymphoma?

by Karenhuston on Fri Feb 27, 2015 8:38 pm

I'm new to the website. Any insight is greatly appreciated - thank you in advance, in case I forget!

I was diagnosed with MGUS while down at the Scottsdale Mayo for a routine exec work up. I got a call a week later they would like to see me again. I had osteoporosis in the spine, 3.4, osteopenia in the hips etc ... So I went to get answers enlighten them including myself them and get on Fosamax (alendronate).

I do everything, come home, and get another call. Please come down and, when they said oncology hematology, I just knew it was not so good, but must be breasts, right?

So I go in and learn about the MGUS and go home on watch and come back to Scottsdale in October and learn I have two cursors present, leukemia and lymphoma, My ag2 is 4.7. M-spike is 5 percent, and this is very new to me.

I see Dr. Keith Stewart. He has some clinical trials going, so hope I'm a candidate, as I have now have ever had any immune system and I site. Anyone have these two precursors active? Am I high risk or will I be able to grow old like I want to?

Last edited by Karenhuston on Sun Mar 01, 2015 12:31 am, edited 1 time in total.

[Karenhuston]

Re: MGUS, leukemia, and lymphoma?

by Karenhuston on Sat Feb 28, 2015 11:33 pm

Does any one have this combination please talk to me I

Last edited by Karenhuston on Sun Mar 01, 2015 11:36 am, edited 2 times in total.

[cindylouise]

Re: MGUS, leukemia, and lymphoma?

by cindylouise on Sun Mar 01, 2015 7:54 am

I wanted to reply because you are obviously worried sick. I think we're probably going to need you to slow down and explain things a little better. I can make out that you have MGUS, and then you also have leukemia, and lymphoma? Or your saying your MGUS is a precursor to these?

I don't want to upset you further, I just think you will get more replies if you could clarify things a little. And I do understand that this is very frightening for you.

So take a deep breath and try to help us understand a little better.

[Nancy Shamanna]

Re: MGUS, leukemia, and lymphoma?

by Nancy Shamanna on Sun Mar 01, 2015 10:27 am

Hi Karen, CindyLouise is right! Try to take a deep breath and maybe itemize the health prob­lems that were found at the Mayo Clinic, Scottsdale? Your health problems of having osteo­penia and being started on Fosamax is what happened with me also. You are fortunate, in a sense, if any­thing such as myeloma, smoldering multiple myeloma, or MGUS is discovered early, before serious damage to your system can occur.

I have heard of Dr. Keith Stewart as being an expert in the field of multiple myeloma, also.