[jhorner]

Re: MGUS with frequent but mild infections

by jhorner on Fri Aug 01, 2014 9:07 pm

@multibilly and Toni,

I have exercised my entire life and really slowed down in 2010 and struggled significantly since 2012 with flu like symptoms after exercise. I suffer from "post exertional malaise", which is caused by immune dysfunction. It has been very frustrating knowing that exercise is recommended, if not necessary, to fight the disease, but not being able to do anything without getting sick. I have not exercised at all since late last year when I started to get infections bi-monthly. I have been eating organic since 2005.

Thank you for your kind words. Take care of yourselves!
J

[Multibilly]

Re: MGUS with frequent but mild infections

by Multibilly on Sat Aug 02, 2014 8:30 am

Jhorner,

I googled "post exertional malaise". I'm sorry you are having to also deal with this condition and I now understand your frustration in your previous post.

Take care.

[Toni]

Re: MGUS with frequent but mild infections

by Toni on Sat Aug 02, 2014 9:45 am

Jhorner - then we have something else in common. I have fibromyalgia - diagnosed almost 20 years ago. My GP keeps telling me I have to exercise for the pain and I keep telling him I can't. The physical therapist was the first one to teach me about pacing. I still can't do it since I have two young children and I'm always running around with them.

Fortunately, there are very good studies recently conducted which support this syndrome.

Usually I can do very brief, mild exercises -- that is, maybe a short 5 minute walk or 5 minutes on my bicycle at most. Sometimes the best I can do are gentle stretches the physical therapist taught me.

Earlier this week I had to join my son at Boy Scout Camp and we walked everywhere. Two days of that and I'm still in pain and deeply fatigued. It takes at least a week to recover somewhat.

I am very sorry you are plagued with this as well. Fresh air and sunshine help. A gentle hug to you.