[Kay]

MGUS diagnosis

by Kay on Sun Jun 26, 2011 1:13 am

Hi,

I am a 69 year old female. My primary doc casually told me at my checkup this last April that he would run a test to check on my MGUS. This was the first I heard of the diagnosis. I had a SPEP that indicated IgG lambda with 0.2 M Spike. The report referred to a 2008 test which was the same; so I did more digging into old records and retrieved some records from my clinic and the hospital. I found out that this dx was first made (as far as I can determine) in 2004. Hello, doc! It would have been nice to know this info.

I had a BMB done in 2004 to see if there was any detectable reason for my pancytopenia. The conclusion in the letter that I received said the pancytopenia was probably due to my injections of Betaseron for multiple sclerosis. This was when the first SPEP was also done but I wasn't told about it.

It took 12 years to finally get my MS diagnosis in spite of numerous symptoms and it annoys me greatly that I wasn't informed of the MGUS diagnosis. I spent a lot of time researching MS and I could have been researching MGUS at the same time.

One of my sister-in-laws has multiple myeloma and is just finishing radiation for a leg bone tumor. She had been in remission for 8 years. And my granddaughter's new husband has had a SCT for multiple myeloma.

Thanks, Kay