I am confused and so many on this forum are so well informed. First of all I was diagnosed with MGUS (ig trisomic 7, spike 1.5) after a BMA last winter. This summer my mom was diagnosed with Chronic Lymphocytic Leukemia, and now my uncle (my Dad's brother) was diagnosed with Waldenstrom macroglobuinemia. My mom's WBCs went from 27,000 to 32,000 within 1 month and she does not have symptoms. Her doctor said to 'watch and wait' and will check blood every 3 months. My doctor checks my blood every 6 months and it has been stable. My uncle is showing signs of kidney problems and will b treated with oral chemos.
Can someone explain the difference? They all sound like bone marrow disorders that affect the immune system. In fact the Waldenstrom almost sounds like multiple myeloma. One doctor told me MGUS probably started from an immune response that produced a specific clone which didn't die and instead mutated. My mom's doctor said almost the same thing to her except her clone was from a B lymphocyte. Is the difference that mom's is from a WBC that mutated and my MGUS is from a clone produced in response to an infection that mutated? Same with Waldenstrom - it was once a clone like MGUS? Wow, family tree with lots a bone marrow issues! Thanks, Diane
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