I've recently had CMV hepatitis and, at the final lot of bloods before the consultant discharged me, he found that I had a paraprotein, indicating that I probably have MGUS.
I have just had routine bloods to check my liver after being ill and the doctor has called me in to say my red blood cells are slightly higher than they should be. My doctor knows nothing about MGUS so luckily, after reading this site, I mentioned to him that if, after my next blood test in January (the one that was to check MGUS levels) it's confirmed I have it, I possibly should see a haematologist.
Anyway, luckily he has referred me straight away due to the red blood cell count, so at least I can go and talk to someone who hopefully knows what MGUS is.
My perception is that the MGUS has started due to my liver infection, bit am worried how quickly I've now got another change (red blood cells changing). Is that a normal progression?
I guess the main thing is I feel fine and guess it's "watch this space" until I go for my referral appointment.
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Re: MCV with MGUS
Hi Henrietta,
Do you know what your paraprotein level was?
I wouldn't necessarily make any associations with your other conditions (liver infection, etc) with the possibility (and I underscore the word "possibility" ) of having MGUS. It's not necessarily a monoclonal gammopathy and you won't know for sure until you have some further tests. Besides, with multiple myeloma, if anything, one's red blood cell count may start to go lower (i.e. anemia), not higher.
When you see the hematologist, you are going to want to ask for the laboratory tests outlined in this link:
http://myeloma.org/pdfs/IMF-U-TestResults-2011_f1web.pdf
Once you have the results of those tests, you will have a much better idea about what is going on.
Best of luck to you.
Do you know what your paraprotein level was?
I wouldn't necessarily make any associations with your other conditions (liver infection, etc) with the possibility (and I underscore the word "possibility" ) of having MGUS. It's not necessarily a monoclonal gammopathy and you won't know for sure until you have some further tests. Besides, with multiple myeloma, if anything, one's red blood cell count may start to go lower (i.e. anemia), not higher.
When you see the hematologist, you are going to want to ask for the laboratory tests outlined in this link:
http://myeloma.org/pdfs/IMF-U-TestResults-2011_f1web.pdf
Once you have the results of those tests, you will have a much better idea about what is going on.
Best of luck to you.
-
Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: MCV with MGUS
Hi Henrietta,
You mention MCV in the title to your posting, but don't directly mention it in your posting. Was it a change in the MCV value in your blood test results that is leading you to seek an appointment with a hematologist?
If so, what were those results, and were there any other results that were outside the normal (reference) range?
You mention MCV in the title to your posting, but don't directly mention it in your posting. Was it a change in the MCV value in your blood test results that is leading you to seek an appointment with a hematologist?
If so, what were those results, and were there any other results that were outside the normal (reference) range?
Re: MCV with MGUS
The doctor was going to send me for more blood tests until I mentioned seeing a haematologist regarding the MGUS. He then immediately said he could refer me, indicating the change in red blood cells pushing the appointment along. I think he was relieved to pass me on as he admitted he has never heard of MGUS.
I asked what he would be possibly treating me for if it wasn't for the MGUS and he told me to go and look up MCV on the patient.co.uk website. My liver bloods were still a bit higher than normal, but he said that was to be expected, as I would have suffered some liver damage whilst having the hepatitis infection. The red blood cells reading was at 104, which isn't that high, but looking back at blood tests from the last few years it has always been at 96.
I've never been told what the original paraprotein levels were. My doctor checked on my records this morning but it was a private consultant who did those bloods and he didn't pass the levels, just the diagnosis, on. I guess I could get them from him, but I'm being referred to the haematologist at the same hospital as him so I guess they can liaise.
I asked what he would be possibly treating me for if it wasn't for the MGUS and he told me to go and look up MCV on the patient.co.uk website. My liver bloods were still a bit higher than normal, but he said that was to be expected, as I would have suffered some liver damage whilst having the hepatitis infection. The red blood cells reading was at 104, which isn't that high, but looking back at blood tests from the last few years it has always been at 96.
I've never been told what the original paraprotein levels were. My doctor checked on my records this morning but it was a private consultant who did those bloods and he didn't pass the levels, just the diagnosis, on. I guess I could get them from him, but I'm being referred to the haematologist at the same hospital as him so I guess they can liaise.
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