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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Maintenance therapy alternatives

by Terri Michigan on Sun Jun 22, 2014 11:21 pm

I know that Revlimid is a common myeloma maintenance therapy.

However, what if you are unable to take Revlimid for one reason or another. What maintenance drug do they usually put people on?

Terri Michigan
Name: Terri Michigan
Who do you know with myeloma?: Self
When were you/they diagnosed?: 2009
Age at diagnosis: 45

Re: Maintenance therapy alternatives

by Wayne K on Mon Jun 23, 2014 11:36 am

I had none and did fine for 3 1/2 years following my SCT. There are so many variations in multiple myeloma that I think it's hard to answer what is best.

Wayne K
Name: Wayne
Who do you know with myeloma?: Myself, my sister who passed in '95
When were you/they diagnosed?: 03/09
Age at diagnosis: 70

Re: Maintenance therapy alternatives

by NStewart on Mon Jun 23, 2014 11:48 am

People are also doing Velcade as maintenance.

Nancy in Phila

NStewart
Name: Nancy Stewart
Who do you know with myeloma?: self
When were you/they diagnosed?: 3/08
Age at diagnosis: 60

Re: Maintenance therapy alternatives

by Beacon Staff on Mon Jun 23, 2014 12:20 pm

This Weekly Poll from last year asked people what their current maintenance regimen was, if any,

Weekly Poll – Current Maintenance Regimen - 2013

As you'll see, the most popular regimens among those currently on a maintenance regimen were, in order:

Revlimid
Revlimid + dex
Velcade + dex
Revlimid + Velcade + dex

Just as a tip, to find a weekly poll that might have information you're searching for, do a search from the forum search box that is structured something like "weekly poll [topic]", for example, "weekly poll maintenance" or "weekly poll Revlimid".

When you're using the basic forum search capability (not the advanced search functionality), it works best just to type a single keyword or maybe two keywords. Searches on phrases like "how to treat multiple myeloma" or "what is the best imaging for myeloma" will not provide very useful results because, unfortunately, the search functionality is not as smart as, say, Google or Bing.

Beacon Staff


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