[blair77]

Maintenance therapy - poll & length of remission

by blair77 on Sun Jul 05, 2015 2:35 am

I'm wondering if a poll has been done on how many people have done maintenance following their stem cell transplant? Also, how long has / did it keep you in "remission"?

[allenbonslett]

Re: Maintenance therapy - poll & length of remission

by allenbonslett on Tue Jul 07, 2015 12:22 pm

I was diagnosed in December 2003. IgG, 80% in first BM biopsy, severely anemic, a few lesions in right leg.

Good response to initial thalidomide / dex / Zometa led to 1st ASCT in April 2004.

Zometa was pretty much my maintenance after this one until August 2008, when relapse was detected. Changed to Revlimid and good response led to 2nd ASCT in April 2009. Revlimid maintenance until May 2015, but, to be fair, it has been waking up for about 8 months now.

Now on Velcade / dex.