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Questions and discussion about smoldering myeloma (i.e., diagnosis, risk of progression, potential treatment, etc.)

Re: Magic numbers; when to start treatment?

by koontzkg on Sun Apr 06, 2014 10:10 am

What was the criteria used to put you in the Ultra High Risk category? Hope you don't mind me asking. I'm still in my early phase of learning about SMM. Was diagnosed in February 2013 and have spent most of my time learning about AL Amyloidosis that is active now. Now that it's in remission, I can turn my attention to learning about SMM.

Thanks.

koontzkg
Name: Kathy
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2/2013
Age at diagnosis: 51

Re: Magic numbers; when to start treatment?

by gardengirl on Sun Apr 06, 2014 8:11 pm

They are the same numbers from the diagram that you posted in the other thread:
1) >60% plasma cells, 2) High FLC (>100), 3) >1 focal lesion on MRI.

http://bloodjournal.hematologylibrary.org/content/122/26/4172/F4.large.jpg

P.S. I like your picture! If only we had superpowers to beat this disease! ;)

gardengirl
Name: gardengirl
Who do you know with myeloma?: Me
When were you/they diagnosed?: Nov. 2013
Age at diagnosis: 47

Re: Magic numbers; when to start treatment?

by koontzkg on Sun Apr 06, 2014 9:56 pm

I was wondering which of those criteria you met to be classified as Ultra High Risk.

And, yes, if only we had superpowers. Elastigirl has always been my superhero alter ego. I think of her a lot these days.

koontzkg
Name: Kathy
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2/2013
Age at diagnosis: 51

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