So I feel like you are doing the right things, but it makes no sense to me for a lab / doctor / cancer center not to follow M proteins. I really don't get that.
Thanks for your reply, MarieP. Indeed, I realize that a large part of the challenge in this fight is securing the knowledge and ability to explore options, ask questions, and have a voice in treatment decisions. Not releasing M-spike numbers because they may be imperfect seems to me also to be a denial of a patient's rights.
Thanks to this forum for connecting and empowering us.