[Cheryl G]

Re: What I haven't been telling you (lung cancer)

by Cheryl G on Thu Feb 04, 2016 8:44 am

I'm sorry to hear about your lung cancer diagnosis, Dana. Are there any options for treating the disease that might also treat your multiple myeloma? You might want to check clinicaltrials.gov and see if existing or experimental multiple myeloma therapies are also being tested against lung cancer.

Although, now that I think about it, having multiple myeloma might disqualify you from some (all?) lung cancer clinical trials. Do you know if that is so?

For what it's worth, here is a list of clinical trials for lung cancer that are currently recruiting for patients in Minnesota (I know you were treated at Mayo Rochester; I can't remember if you live in Minnesota or not):

https://clinicaltrials.gov/ct2/results?recr=Open&cond=lung+cancer&cntry1=NA%3AUS&state1=NA%3AUS%3AMN

[Mike F]

Re: What I haven't been telling you (lung cancer)

by Mike F on Thu Feb 04, 2016 12:38 pm

It's terrible to hear what you're having to go through, Mister Dana, but it sounds like things are going reasonably well right now. That's heartening. The odds may be against you, but you're an individual in your own unique situation. Even if the odds are one in a million, they don't really matter if you're that one.

[Restlessrebel]

Re: What I haven't been telling you (lung cancer)

by Restlessrebel on Fri Feb 05, 2016 1:40 am

Mister Dana, you are in my prayers.

[Mister Dana]

Re: What I haven't been telling you (lung cancer)

by Mister Dana on Fri Feb 05, 2016 3:32 pm

Thanks for your concern, everyone. My side effects from the lung cancer chemo have been amazingly minor. The nasal drip and resulting need to cough are a daily thing, but I am sure there are allergy sufferers out there who cope with worse. A few bouts of fatigue each month are no problem because I am retired

I got stronger over the summer and greatly enjoyed my 50-year high school graduation reunion in August. Old friends whom I had not seen in a few years never suspected that I had any disease. And since there has been no return of myeloma, I don't have to deal with those side effects, either. I got my post- transplant baby vaccinations, too. My Zometa schedule was monthly for the first year after ASCT and quarterly for the second ... I've only got a few more of those ahead.

So it is life as normal, except for visiting the clinic for a few hours once every three weeks.