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life

by christephanie7137 on Sun Apr 07, 2013 2:08 pm

Hello everyone, with my new diagnosis I've decided to rsearch things.I found this site and with a lil courage from my x wife stephanie and by her love and concern I decided its time to ask and share.I'm 45 yrs old in 2004 I was diagnosed with chronic cirohsis some six months lAter hep c.I also have copd and in January this year had a diagnosis with monochlonal gamopathy (spelling?) now as of April 5th a lot of blood work cat scans xrays stage 1 multiple myeloma.I'm asking with all of this and so far no treatments for anything what is the prognosis?I have recently started and have drs. Appts with GI primary Dr amongst a lot of others as well as Dr Hanna @ ut cancer center in Knoxville Tennessee.I haven't gave up completly I put a lot of faith in god I cry a lot I have no one next to me the x lives away from here I have 2 sons that dontb want to talk about it and I never see.I'm asking now with tears please god please let someone care enough to talk to me be there or please just answer me...

christephanie7137

Re: life

by blair77 on Sun Apr 07, 2013 3:59 pm

I hope they will be able to help please try and stay strong!

blair77
Who do you know with myeloma?: My husband
When were you/they diagnosed?: April 2013
Age at diagnosis: 43

Re: life

by kevinc on Sun Apr 07, 2013 6:45 pm

Has your doctor explained the result of your tests yet? Try to find out if he has a treatment plan going forward. Good luck to you and stay strong

kevinc

Re: life

by Maria on Sun Apr 07, 2013 11:43 pm

Stay strong, take one day at a time, get treatment and enjoy everyday, even if for a half hour, we all feel hopeless at times, blessings and hugs

Maria

Re: life

by lys2012 on Tue Apr 09, 2013 9:57 am

I live in Canada so I can't conect you to my support group (which is not a multiple myeloma group, rather a group for young adults with Cancer in Canada). I am mid 30's now, pretty young for multiple myeloma, but it happens in young people to, just not that common.

We all feel "why me?" and alone at points in our path, so I want to tell you it's ok to feel what you are feeling, but, I encourage you to ask your Cancer dr. for referal to a therapist who has experience with helping cancer patients deal with the diagnosis. Talking to someone was an important part of my "treatment" as much as chemo was I think.

Also you could as your Cancer Dr's nurse to pull together some imformation (they usually have a lot of flyers / handouts) about multiple myeloma and what kind of resources are available in your area. I remember my nurse kept giving me info I had a shoe box full!

lys2012
Name: Alyssa
When were you/they diagnosed?: 2010, Toronto, Canada
Age at diagnosis: 32


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