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Klas Ingesson - Swedish footballer, coach
Hi, I'm really shocked by the death of Klas Ingesson at the age of 46 (news). Klas was a sporty and well trained man and got the best treatment in Sweden - even with the new agents. When such young people lose the battle so fast - we have to think twice about the breakthroughs and advances. Docs are so enthusiastic in some interviews, that one could think myeloma is history soon - but the patient stories and OS trial numbers tell other stories. Sometimes, I don't know how far we are really and feel confused. Would be great to her more from experts about end stage myeloma and its treatment at the Beacon. Thank you anyway for this place, Thomas
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Thomas
Re: Klas Ingesson - Swedish footballer, coach
It is wonderful that research is ongoing for a cure to multiple myeloma. For a patient trying to stay on top of what would be best for themselves, it is overwhelming. Doctors talk about myeloma becoming a chronic disease, but for many that means multiple switches to different medicines, multiple hospital stays because the immune system is so low, and multiple disappointments when something doesn't work. People hope that they or their loved one will be one of the lucky ones lasting 10 or more years on treatment. I wish it were so.
Re: Klas Ingesson - Swedish footballer, coach
Hi Thomas,
I had read online about the passing of Mr. Klas Ingesson. It is indeed a tragic story.
With respect to doctors being enthusiastic is some interviews, do not forget that the typical myeloma patient is diagnosed at age 70. With the potential additions of an HDAC inhibitor, elotuzumab and daratumumab in the next few years, it may be that myeloma can be a chronic disease for a 70 year old standard risk patient fairly soon. I do not think myeloma doctors are thinking of patients like Mr. Ingesson when they are talking. It appears to be a long ways off before myeloma can be a chronic disease for someone diagnosed in their 40's or 50's.
Great point by TerriJ.
"Doctors talk about myeloma becoming a chronic disease, but for many that means multiple switches to different medicines, multiple hospital stays because the immune system is so low, and multiple disappointments when something doesn't work. People hope that they or their loved one will be one of the lucky ones lasting 10 or more years on treatment. I wish it were so."
Quality of life does not appear to be that great for most patients with the current myeloma therapies (IMIDs, proteasome inhibitors, steroids, and alkylators). Hopefully the new therapies will obtain deep enough remissions that they can get some "therapy breaks" and enjoy good QOL for periods in between treatments.
Mark
I had read online about the passing of Mr. Klas Ingesson. It is indeed a tragic story.
With respect to doctors being enthusiastic is some interviews, do not forget that the typical myeloma patient is diagnosed at age 70. With the potential additions of an HDAC inhibitor, elotuzumab and daratumumab in the next few years, it may be that myeloma can be a chronic disease for a 70 year old standard risk patient fairly soon. I do not think myeloma doctors are thinking of patients like Mr. Ingesson when they are talking. It appears to be a long ways off before myeloma can be a chronic disease for someone diagnosed in their 40's or 50's.
Great point by TerriJ.
"Doctors talk about myeloma becoming a chronic disease, but for many that means multiple switches to different medicines, multiple hospital stays because the immune system is so low, and multiple disappointments when something doesn't work. People hope that they or their loved one will be one of the lucky ones lasting 10 or more years on treatment. I wish it were so."
Quality of life does not appear to be that great for most patients with the current myeloma therapies (IMIDs, proteasome inhibitors, steroids, and alkylators). Hopefully the new therapies will obtain deep enough remissions that they can get some "therapy breaks" and enjoy good QOL for periods in between treatments.
Mark
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Mark11
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