Dr Terry Wahls wrote a book called "The Wahls Protocol" copyright 2014. Chapter 7 is called "Wahls Paleo Plus" . (page 188)
On page 189 she says, "it is the diet I follow myself, with great results."
page 191-"ketogenic diets are nothing new, but they continue to evolve. In order for you to accept the unconventional dietary characteristics of Wahls Peleo Plus, I want you to understand what a ketogenic diet is and why it is so good for your brain..."
page 193 "There is exciting research indicating that ketogenic diets are an excellent way to fight an active, even advanced cancer."
The footnote goes to Thomas Seyfried's book "Cancer as a Metabolic Disease: On the Origin, Management, and Prevention of Cancer, New York: John Wiley & Sons, 2012
Forums
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
I posted this another place, but it should be here.
MSG and other sources of free glutamate;
Various Ingredients Containing Free Glutamate (MSG) :
Auxi grow sprayed on conventional fruits and vegetables
Barley malt
Bouillon and broth
Brown rice syrup
Calcium caseinate, Sodium caseinate
Calcium glutamate (E 623)
Carrageenan (E 407)
Citric acid, Citrate (E 330)
Corn starch
Corn syrup
Dextrose
Enriched (anything)
Enzyme modified (anything)
Enzymes (anything)
Fermented protein (any)
Flavors or flavoring [i.e. natural flavors, raspberry flavor, vanilla flavor,]
Gelatin
Glutamic acid (E 620), Glutamate (E 620)
Hydrolyzed (anything)
Hydrolyzed protein (any)
Lipolyzed butter fat
Magnesium glutamate (E 625)
Malt extract
Maltodextrin
Milk powder, reduced fat milk (skim; 1%; 2% most things low fat or no fat
Modified food starch
Monoammonium glutamate (E 624)
Monopotassium glutamate (E 622)
Monosodium glutamate (E 621)
Natrium glutamate
Pectin (E 440)
Protease
Protein fortified (anything)
Rice syrup
Seasonings / spices
Soy protein isolate
Soy protein, soy protein concentrate
Soy sauce
Soy sauce extract
Stock
Textured protein
Ultra-¬‐pasteurized any protein
Vetsin
Vitamin enriched
Whey protein isolate
Whey protein, whey protein concentrate
Xanthum gum
Yeast (autolyzed)
Yeast extract
Yeast food, yeast nut
MSG and other sources of free glutamate;
Various Ingredients Containing Free Glutamate (MSG) :
Auxi grow sprayed on conventional fruits and vegetables
Barley malt
Bouillon and broth
Brown rice syrup
Calcium caseinate, Sodium caseinate
Calcium glutamate (E 623)
Carrageenan (E 407)
Citric acid, Citrate (E 330)
Corn starch
Corn syrup
Dextrose
Enriched (anything)
Enzyme modified (anything)
Enzymes (anything)
Fermented protein (any)
Flavors or flavoring [i.e. natural flavors, raspberry flavor, vanilla flavor,]
Gelatin
Glutamic acid (E 620), Glutamate (E 620)
Hydrolyzed (anything)
Hydrolyzed protein (any)
Lipolyzed butter fat
Magnesium glutamate (E 625)
Malt extract
Maltodextrin
Milk powder, reduced fat milk (skim; 1%; 2% most things low fat or no fat
Modified food starch
Monoammonium glutamate (E 624)
Monopotassium glutamate (E 622)
Monosodium glutamate (E 621)
Natrium glutamate
Pectin (E 440)
Protease
Protein fortified (anything)
Rice syrup
Seasonings / spices
Soy protein isolate
Soy protein, soy protein concentrate
Soy sauce
Soy sauce extract
Stock
Textured protein
Ultra-¬‐pasteurized any protein
Vetsin
Vitamin enriched
Whey protein isolate
Whey protein, whey protein concentrate
Xanthum gum
Yeast (autolyzed)
Yeast extract
Yeast food, yeast nut
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
Cathy, can't thank you enough for sharing your remission story.
My mother has just been diagnosed with multiple myeloma and has been in ketosis (according to the pee strips anyway) since then (so a week). We are acting fast! I read Thomas Seyfried's book a couple years ago and have been sort of obsessed with the potential for a ketogenic diet to moderate cancer. I am so, so happy to hear that your remission is going so well right now.
I will definitely keep following your story and am so buoyed by your success so far.
I also wanted to tell you about a great cookbook by a Swedish guy named Skaldeman. It is available on most online book sites, even though translated from Swedish. It's called generically "The Low Carb High Fat Cookbook" but it has great photos and recipes.
Your voice is really important and I want to thank you so much for sharing your journey.
My mother has just been diagnosed with multiple myeloma and has been in ketosis (according to the pee strips anyway) since then (so a week). We are acting fast! I read Thomas Seyfried's book a couple years ago and have been sort of obsessed with the potential for a ketogenic diet to moderate cancer. I am so, so happy to hear that your remission is going so well right now.
I will definitely keep following your story and am so buoyed by your success so far.
I also wanted to tell you about a great cookbook by a Swedish guy named Skaldeman. It is available on most online book sites, even though translated from Swedish. It's called generically "The Low Carb High Fat Cookbook" but it has great photos and recipes.
Your voice is really important and I want to thank you so much for sharing your journey.
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withbellsMM - Name: WithbellsMM
- Who do you know with myeloma?: My mother
- When were you/they diagnosed?: Sept 21, 2015
- Age at diagnosis: 64
Re: Ketogenic diet and multiple myeloma
Hi Cathy,
As I said before, the fact that your myeloma is not progressing even though you are not taking traditional therapy is no proof that your diet is having any effect on your disease. For decades, newly diagnosed myeloma patients would be given induction therapy, often followed by a stem cell transplant, and then no treatment whatsoever until relapse. And you know what? They would remain in remission – with NO treatment – for a few years before relapse
So the fact that your numbers have been stable while you've been on your ketogenic diet says little about whether or not it's having an effect on your myeloma. The results certainly don't justify statements like these that you've made here in the forum:
"diet has been very effective in controlling my myeloma"
"I have had impressive results from my efforts"
"I am following a very low carb diet and that seems to be prolonging my remission so far"
It's those statements, and the effect they can have on people who come to this forum and are not yet knowledgeable about how to treat myeloma, that I object to the most.
I applaud your documenting for all of us here your diet and the how all your different treatments have affected your disease. I hope you continue doing so.
I also hope, however, that you'll be more honest in interpreting the effect the diet has had on your disease, such as recognizing that your best lab results – a kappa free light chain level of 12 or 13 – were obtained while you were still on traditional treatments (in your case, Revlimid).
(For those who are new to this thread, I'm including below a graph I posted previously that summarizes Cathy's kappa free light chain levels and when she took different treatments. It may shed some light on why I make some of the statements I make in this posting and in the one or two previous postings I made in this thread.)
As I said before, the fact that your myeloma is not progressing even though you are not taking traditional therapy is no proof that your diet is having any effect on your disease. For decades, newly diagnosed myeloma patients would be given induction therapy, often followed by a stem cell transplant, and then no treatment whatsoever until relapse. And you know what? They would remain in remission – with NO treatment – for a few years before relapse
So the fact that your numbers have been stable while you've been on your ketogenic diet says little about whether or not it's having an effect on your myeloma. The results certainly don't justify statements like these that you've made here in the forum:
"diet has been very effective in controlling my myeloma"
"I have had impressive results from my efforts"
"I am following a very low carb diet and that seems to be prolonging my remission so far"
It's those statements, and the effect they can have on people who come to this forum and are not yet knowledgeable about how to treat myeloma, that I object to the most.
I applaud your documenting for all of us here your diet and the how all your different treatments have affected your disease. I hope you continue doing so.
I also hope, however, that you'll be more honest in interpreting the effect the diet has had on your disease, such as recognizing that your best lab results – a kappa free light chain level of 12 or 13 – were obtained while you were still on traditional treatments (in your case, Revlimid).
(For those who are new to this thread, I'm including below a graph I posted previously that summarizes Cathy's kappa free light chain levels and when she took different treatments. It may shed some light on why I make some of the statements I make in this posting and in the one or two previous postings I made in this thread.)
- KDKFLCs.jpg (84.66 KiB) Viewed 1194 times
Re: Ketogenic diet and multiple myeloma
Cathy I want to encourage you to keep on "keeping on" in your pursuit of health via diet and lifestyle changes. There is so much more to obtaining good health than the allopathic medical community is willing to tell the person w/cancer.
I have read your posts w/interest and appreciate the info that you so willingly share w/those of us on this forum.
You are wise to appreciate TerryH's "graphing ability" but to let the criticisms roll off your back. The end result is what is IMPORTANT, and your good results NOT using maintenance drugs and depending on diet and education are encouraging to me. I think your results certainly "DO JUSTIFY the statements you have made. So once again thanks for all of your input.
I have read your posts w/interest and appreciate the info that you so willingly share w/those of us on this forum.
You are wise to appreciate TerryH's "graphing ability" but to let the criticisms roll off your back. The end result is what is IMPORTANT, and your good results NOT using maintenance drugs and depending on diet and education are encouraging to me. I think your results certainly "DO JUSTIFY the statements you have made. So once again thanks for all of your input.
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Jo Anne - Name: Jo Anne
- Who do you know with myeloma?: husband
- When were you/they diagnosed?: 1/2015
- Age at diagnosis: 71
Re: Ketogenic diet and multiple myeloma
Dear WithbellsMM,
How surprising that you already read Thomas Seyfried's book! It is so encouraging, isn't it? Please let me know how your Mother does and I will let you know how I am doing.
I would recommend your Mother also take curcumin with bioperine - I take 6 g (6000 mg) per day.
And, thank you for the suggestion of the cookbook. I ordered it and am excited to see the recipes!.
Good to hear from you and I hope this helps your mother.
Cathy.
How surprising that you already read Thomas Seyfried's book! It is so encouraging, isn't it? Please let me know how your Mother does and I will let you know how I am doing.
I would recommend your Mother also take curcumin with bioperine - I take 6 g (6000 mg) per day.
And, thank you for the suggestion of the cookbook. I ordered it and am excited to see the recipes!.
Good to hear from you and I hope this helps your mother.
Cathy.
Last edited by antelope1225 on Mon Oct 05, 2015 8:49 pm, edited 3 times in total.
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
Thank you for your encouragement, Jo Anne.
I feel incredibly grateful that my oncologist is supportive.
I hope people who are offended by what I say about my lifestyle or religion will just skip over my posts.
Cathy
I feel incredibly grateful that my oncologist is supportive.
I hope people who are offended by what I say about my lifestyle or religion will just skip over my posts.
Cathy
Last edited by antelope1225 on Tue Oct 06, 2015 1:09 am, edited 3 times in total.
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
Hi TerryH.
I assume you are concerned that I will lead someone to quit taking their medicine or to have false hope. I do not want anyone to think they will be cured by this.
I assume you are concerned that I will lead someone to quit taking their medicine or to have false hope. I do not want anyone to think they will be cured by this.
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
My husband (I have known him 42 years) says I am a "hard headed little Irish lady". I am and I will continue my ketogenic diet. I measure blood ketones and glucose every night and have not had a single potato chip or lick of frosting since I started. I believe the length and quality of my life depend a lot on my lifestyle.
Beta 2 macroglobulin was 8.5 in 2012, 6.5 right after ASCT and 6.7 in fall 2013 (1 year after ASCT)
3 1/2 years since diagnosis of multiple myeloma:
Date Kappa free light chain level
Apr 01, 2012 1150
Jun 01, 2012 649
Aug 01, 2012 62
Oct 01, 2012 405
Nov 19, 2012 ASCT
Dec 01, 2012 3
Feb 01, 2013 8
Apr 01, 2013 32
Jun 01, 2013 49
Aug 01, 2013 63
Oct 01, 2013 48
Dec 01, 2013 28
Feb 01, 2014 23
Apr 01, 2014 28
Started ketogenic diet - cut Revlimid to 5mg /wk
Jun 01, 2014 22
Aug 01, 2014 12
Oct 01, 2014 16
Dec 19, 2014 20
Feb 01, 2015 25
Apr 01, 2015 25
Jun 01, 2015 24
Quit taking Revlimid, started taking 6 g
curcumin with bioperine & tsp of coconut oil
Sep 06, 2015 21
I have had stable disease (no progression) since I started ketogenic diet. I take RDA of vitamins - no megadoses and I try to avoid toxins, including MSG and other free glutamates.
I write this is to encourage others with cancer.
Beta 2 macroglobulin was 8.5 in 2012, 6.5 right after ASCT and 6.7 in fall 2013 (1 year after ASCT)
3 1/2 years since diagnosis of multiple myeloma:
Date Kappa free light chain level
Apr 01, 2012 1150
Jun 01, 2012 649
Aug 01, 2012 62
Oct 01, 2012 405
Nov 19, 2012 ASCT
Dec 01, 2012 3
Feb 01, 2013 8
Apr 01, 2013 32
Jun 01, 2013 49
Aug 01, 2013 63
Oct 01, 2013 48
Dec 01, 2013 28
Feb 01, 2014 23
Apr 01, 2014 28
Started ketogenic diet - cut Revlimid to 5mg /wk
Jun 01, 2014 22
Aug 01, 2014 12
Oct 01, 2014 16
Dec 19, 2014 20
Feb 01, 2015 25
Apr 01, 2015 25
Jun 01, 2015 24
Quit taking Revlimid, started taking 6 g
curcumin with bioperine & tsp of coconut oil
Sep 06, 2015 21
I have had stable disease (no progression) since I started ketogenic diet. I take RDA of vitamins - no megadoses and I try to avoid toxins, including MSG and other free glutamates.
I write this is to encourage others with cancer.
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: Ketogenic diet and multiple myeloma
Hey WithbellsMM.
The book you recommended by Sten Sture Skaldeman finally came in and I love it! Great recipes and advice and he made me laugh with his advice on how not to alarm your Mother-in-law when she comes to visit.(pg 29, 30):.
"But still your mother-in-law comes to visit! You probably feel like you should make an exception (to what you would normally eat)... What do you do?"
Give her pudding if you want to. Bake cakes and sweet rolls. Meanwhile you should eat a spinach frittata"
"It may seem a little insulting to eat something different than your guests"... and he goes on to make a few suggestions about how to eat differently.
I am enjoying the book!
The book you recommended by Sten Sture Skaldeman finally came in and I love it! Great recipes and advice and he made me laugh with his advice on how not to alarm your Mother-in-law when she comes to visit.(pg 29, 30):.
"But still your mother-in-law comes to visit! You probably feel like you should make an exception (to what you would normally eat)... What do you do?"
Give her pudding if you want to. Bake cakes and sweet rolls. Meanwhile you should eat a spinach frittata"
"It may seem a little insulting to eat something different than your guests"... and he goes on to make a few suggestions about how to eat differently.
I am enjoying the book!
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
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