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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Ketogenic diet and multiple myeloma

by antelope1225 on Mon Mar 30, 2015 7:09 pm

The ketogenic diet that used to treat epileptic children is 90% fat, 9% protein and 2% carb.

I have been eating about 78% of my calories as fat, 16% as protein and 5% as carbs, but after reading Ron's links, I will lower my protein and leave carbs the same.

People might wonder how you can have so much fat, so here are my tips.
1. Fat is very dense, so you don't need to eat as much volume and your stomach shrinks so you are satisfied with less quantity of food.
2. I get most of my fat in drinks. Every morning I put about 1 T grass fed butter, 1 T coconut oil and 2-3T heavy cream in my 12- 14 oz coffee with a little stevia. That plus an egg cooked in butter with an vegetable (zucchini, left over cooked vegetable)a little organic cream cheese and few olives is very satisfying until lunch.
3. For lunch I generally have some left over dinner from the night before with a salad. And an oily dressing
4. Most afternoons I make either hot tea with a mixture like my coffee, or high fat hot cocoa by melting 1/4 oz unsweetened bakers chocolate in water 2 min and then add my butter, coconut oil, cream & stevia.
Dinner - I make great dinners and put much more effort in vegetables than I used to.
I keep track of what I eat on a program that tells me how much fat, protein, carb & fiber I ate that day and every morning I check my blood glucose and every night I do a ketone blood test and another glucose test. I try to keep my glucose around 84 and my ketones above 2.5
Then watch your blood test results! It is amazing.

antelope1225
Name: Cathy1225
Who do you know with myeloma?: Myself
When were you/they diagnosed?: May 25 2012
Age at diagnosis: 55

Re: Ketogenic diet and multiple myeloma

by antelope1225 on Mon Mar 30, 2015 7:38 pm

I am excited about the research Ron found. I think that is a link I was missing.

The research showed 70% reduction in one cancer and 56% in another when protein was lowered from 21% to 7% of calories- and when the protein came from plant sources it inhibited cancer more than from animal sources. Many vegetable actually have some protein, but I am going to have to experiment with this. 7% of my 1500 calories is only about 105 calories from protein per day. I like nuts, but have never eaten much tofu.

What are you eating, Ron?

antelope1225
Name: Cathy1225
Who do you know with myeloma?: Myself
When were you/they diagnosed?: May 25 2012
Age at diagnosis: 55

Re: Ketogenic diet and multiple myeloma

by Ron S on Mon Mar 30, 2015 9:06 pm

Hi Cathy

I am actually increasing carbs some,in the way of beans,lentils and some fresh fruit while decreasing animal protein, including dairy. I think the trade off of not being in constant ketosis is worth lowering the IGF-1 by eating a few more carbs. Still not eating wheat and most grains. Do have some rice or other non gluten grains in small amounts.

Ron S

Re: Ketogenic diet and multiple myeloma

by antelope1225 on Tue Mar 31, 2015 2:19 pm

Yes, we need to be able to enjoy & live with our diet.

Just being aware and careful not to increase consumption of meats is important.

Some vegetable sources of protein are: nuts and seeds (sunflower, pumpkin, chia, etc), broccoli, spinach, edamame, and soy milk ... and tofu or tempeh (but I have never liked tofu).

Cathy

antelope1225
Name: Cathy1225
Who do you know with myeloma?: Myself
When were you/they diagnosed?: May 25 2012
Age at diagnosis: 55

Re: Ketogenic diet and multiple myeloma

by cindy0711 on Tue Apr 07, 2015 3:36 pm

Hi, Cathy,
I have been following your thread closely. My husband has multiple myeloma but I have decided to take the advice offered by so many and take care of myself. The increased energy will make me a better caregiver. I have weight to lose and have been working on a low-carb eating plan and increasing my exercise. I have the most success when I watch my carbs and was able to maintain my weight over my husband's ASCT which occurred over the Christmas holidays. I am just getting ready to re-read all the posts in your thread from beginning to end again. Of most interest to me is maintaining a steady blood sugar level. So I will need to buy equipment. I am not a diabetic but have diabetic ancestors so I am at risk.

Thank you so much for taking the time to share your ketogenic way of eating.
Cindy

cindy0711
Name: Cindy K
Who do you know with myeloma?: Husband
When were you/they diagnosed?: July 2014
Age at diagnosis: 56

Re: Ketogenic diet and multiple myeloma

by mrozdav on Tue Apr 07, 2015 4:21 pm

Antelope 1225:

To what do your doctors attribute your very fine progress, which you describe in this posting? You say that your experience is controversial and perhaps unique, but still, it seems that it should call someone's attention – one would think.

mrozdav

Re: Ketogenic diet and multiple myeloma

by RadiantTiger on Tue Apr 07, 2015 5:38 pm

Antelope1225,

I am heartened to hear that you have improved your situation dramatically through an intensive diet and supplement program.

The 'cancer pharmaceutical consultants' (how I think of my myeloma doctors) are good at their specialty, but I find they have almost *nothing* at all to offer in the diet and supplement depart­ment.

Good for you in finding non-pharmaceutical approaches which helped you. That's what I want to do to, once I find some MD's with knowledge in these other areas, in addition to having some understanding in my disease and its treatments.

RT

RadiantTiger
Name: Radiant Tiger
Who do you know with myeloma?: Myself, my deceased uncle
When were you/they diagnosed?: Feb 2015
Age at diagnosis: 54

Re: Ketogenic diet and multiple myeloma

by antelope1225 on Tue Apr 07, 2015 10:36 pm

Cindy0711 wrote:

I have been following your thread closely ... Thank you so much for taking the time to share your ketogenic way of eating.

Thanks Cindy! Let me know if there is anything I can do to encourage you.

Cathy

antelope1225
Name: Cathy1225
Who do you know with myeloma?: Myself
When were you/they diagnosed?: May 25 2012
Age at diagnosis: 55

Re: Ketogenic diet and multiple myeloma

by antelope1225 on Tue Apr 07, 2015 10:47 pm

Hi Radiant Tiger (what a neat name)

I see you have recently been diagnosed and are going through your first 6 weeks. I gave a little history of my multiple myeloma so it would give Melissa and others hope that even if things seem bleak, we can do things to help fight this cancer.

I don't like to argue with other people - some say diet makes no difference. That has not been my experience. I just started the Berberine in January and the Curcumin and Resveratrol after my March 21 appointment.

Good luck.

Cathy

antelope1225
Name: Cathy1225
Who do you know with myeloma?: Myself
When were you/they diagnosed?: May 25 2012
Age at diagnosis: 55

Re: Ketogenic diet and multiple myeloma

by Rneb on Wed Apr 08, 2015 9:18 pm

Melissa:

Plain old oatmeal, with a bit of fruit and a bit of Dark Sugar, has been a god-send for ongoing GI tract issues, and for helping rid my body of toxic substances. For most folks, toxicity collects in the bowel.

Hope you find some relief. Soon.

Rneb

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