[navydad]

Just not sure

by navydad on Fri Apr 06, 2012 1:53 pm

I dont know where to start,, but to begin with I am severely cold intolerant,, been told its fibro,, all winter my arms would hurt, literally hurt from teh shoulders down,, to the fingertips,, doctor chalked it upto ostereoarthritis,, now its a constant ache in both arms,, cant tolerate any pressure on them at all,, legs are wobbly,, trouble even bending over,, and now a severe pain in the back,, its to the point i dont even want to eat from pain,, have had so many tesy,, in 2010,, was at mayo,, they took a biopsy from my skin to look for amyloids,, apparently all urine test were ok,, always have infections,, salivary glands are shot,, suspected sjgrens,, no positive bloodwork,, trouble swallowing,, and all gp does is give me pain pills,, why would my arms feel like there broke,, same with my spine,, I am afraid I;m going ot end up dead before they figure it out,, you go to a ER and they just look at you like your nuts,, even typing this is problem,,
my thighs burn,, my feet burn,, but my spine is on fire,, what the heck is going on,, everything just cramps up or burns,, fingers feel broke,, everything feels broke,,

[Ron Harvot]

Re: Just not sure

by Ron Harvot on Sun Apr 08, 2012 2:15 am

What you are describing does not sound like Multiple Myeloma, especially since you said that the urine test came back normal. With multiple myeloma excess protein in the urine during a routine physical is how many of us first learned that something unusual was going on.

Have they tested you for Lyme disease?

Your symptoms sound something closer to that.

Ron

[suzierose]

Re: Just not sure

by suzierose on Sun Apr 08, 2012 9:27 am

Ron
I had same thought. Get tested for Lyme disease.