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Just got taken of Revlimid i was taking 5mg at night

by greg matthews on Thu Feb 16, 2012 6:32 pm

Kept breaking out in a Rash.

greg matthews
Name: Greg Matthews
Who do you know with myeloma?: myself
When were you/they diagnosed?: 12-28-2010
Age at diagnosis: 48

Re: Just got taken of Revlimid i was taking 5mg at night

by Ron Harvot on Fri Feb 17, 2012 3:37 pm

Greg,

How long were you on Revlimid and did your dosing change over time?

Ron

Ron Harvot

Re: Just got taken of Revlimid i was taking 5mg at night

by greg matthews on Sat Feb 18, 2012 9:20 pm

I was on 25 mg 14 day cycle off for 10 during chemo third cycle broke out in rash.
Then 10 mg for about from July 2011 - october 2011, broke out in a rash. This was 28 day cycle no break
October went to 5mg 28 day cycle no break rach strarted back in Feb 2012. Told doctors I had enough my body does not like it. They took me off, if they didnt i would have. not messing with stephen johson syndrome.

I go back in March for my 3 month check up. We will talk then. They know I am ready for holilistic approach now

greg matthews
Name: Greg Matthews
Who do you know with myeloma?: myself
When were you/they diagnosed?: 12-28-2010
Age at diagnosis: 48

Re: Just got taken of Revlimid i was taking 5mg at night

by Ron Harvot on Sun Feb 19, 2012 1:14 am

Some patients are switched to Thalidamide in such cases. You might ask about it, if you haven't already.

Ron

Ron Harvot

Re: Just got taken of Revlimid i was taking 5mg at night

by greg matthews on Sat Feb 25, 2012 8:51 pm

I am sure they are going to try and put me on that. Just have to wait and see. My test results will tell me.

greg matthews
Name: Greg Matthews
Who do you know with myeloma?: myself
When were you/they diagnosed?: 12-28-2010
Age at diagnosis: 48


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