Thnx Terry. Yeah I go to my hem/onc on the 26th. So hopefully when I leave there I will know SOMETHING for SURE!
Bubba.....
Forums
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BayouSouth - Name: Bubba
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: Oct 2012
- Age at diagnosis: 55
Re: Just been diagnosed, need help
Bubba, your case seems so similar to my husband's. When his T5 turned to mush, the biopsy showed nothing. That was in 2007. In 2010 another biopsy showed nothing. It was a free kappa light chain that actually showed the myeloma. Get in with a specialist so that you will know for sure. I know you don't want a positive diagnosis. However you so need to get some answers. You can deal with what you know, but the unknown is rough.
You and your family hang in there. Praying for you.
Marie
You and your family hang in there. Praying for you.
Marie
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Marie64 - Name: Marie
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: 2010
- Age at diagnosis: 45
Re: Just been diagnosed, need help
Marie, is the free kappa light chain where they collect the urine for 24 hours? If so, they did that when I was in the hospital last week. I will know the results when I see my hem/onc the 26.
Bubba..........
Bubba..........
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BayouSouth - Name: Bubba
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: Oct 2012
- Age at diagnosis: 55
Re: Just been diagnosed, need help
No, free kappa is a blood test. Nothing ever showed up on my husband's urine test either.
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Marie64 - Name: Marie
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: 2010
- Age at diagnosis: 45
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