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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Judie's stem cell transplant

by twoswyfts on Fri Oct 20, 2017 6:12 pm

Hair loss time has come. I was told when receiving the Cytoxan during mobilization that I would lose it in about two weeks. Sure enough, on day 14, handfuls starting coming out. I went to Supercuts and got a real short pixie. This was not the best plan because the scalp becomes very tender. It itches beyond belief. I lasted about two days with a little hair on my head. The tenderness wherever the hair still was and the itching were quite uncomfortable. As the hair falls out it gets all over your jackets, pillows, etc.

I went to Great Clips and said just take it off. As soon as the hair was gone, the tenderness was relieved. Great Clips has a program called Clips of Kindness for people needing the cut due to chemo. My cut was free, and they were very kind and respectful. I would recommend them highly!

Now I am wearing pretty scarves and hats. I don't miss the hair. I will be looking forward to fresh new hair in the future!

twoswyfts
Name: Judie
Who do you know with myeloma?: Me
When were you/they diagnosed?: Oct 4, 2016
Age at diagnosis: 61

Re: Judie's stem cell transplant

by GoDucks on Sun Oct 22, 2017 9:17 pm

Hi Judie,

I had my two days of testing last week, sign consent papers this week. My patient education class is November 2 Then it's 3-4 days of Neupogen starting November 3-6, with stem cell harvest begin­ning November 6 for 1-3 days until they get enough cells. Short break and then back to the hospital on November 13 and 14 for high-dose chemotherapy (melphalan). I'll be admitted to the hospital / transplant center on the evening of November 14 and get my stem cells back on November 15. Hoping for minimal side effects and out in 14 days or less. We'll see. Looks like I get to spend Thanksgiving in the hospital.

GoDucks
Name: GoDucks
Who do you know with myeloma?: me
When were you/they diagnosed?: March, 2017
Age at diagnosis: 61

Re: Judie's stem cell transplant

by twoswyfts on Thu Oct 26, 2017 10:26 am

Hi GoDucks,

You are having a busy few weeks. We are pretty close in scheduling. My transplant will be October 30. I will be outpatient, but I am living in an apartment right across the street from the clinic. I hope to be home by Thanksgiving. I will hope to hear more from you as things move along.

Best wishes and all positive thoughts coming your way.

twoswyfts
Name: Judie
Who do you know with myeloma?: Me
When were you/they diagnosed?: Oct 4, 2016
Age at diagnosis: 61

Re: Judie's stem cell transplant

by Hopeful1 on Sun Oct 29, 2017 8:39 am

HI!

Best of luck on your appointment tomorrow the 30th. I go the same day for the results of my biopsy taken on the 16th for the restaging. These results will determine whether the docs remain with the plan for a tandem allo.

I wish and pray for an easy run for you with your start of the journey. Do all the docs ask and be patient (I know, easy for me to say). First two weeks were the toughest.

Blessings to you. I will watch to follow your days.

Hopeful1
Name: Hopeful1
Who do you know with myeloma?: Self
When were you/they diagnosed?: March 2016
Age at diagnosis: 56

Re: Judie's stem cell transplant

by GoDucks on Sun Dec 03, 2017 2:34 pm

Hi Judie.

I hope your transplant went well. I got my cells back on November 15 and spent 14 days in the hospital. Worst side effects were a really bad sore throat and loss of appetite. Still in Portland for another 10 days or so and then finally back home. Appetite is coming back and still really really tired, but each day is a bit better, so looking ahead to being back home and the holidays.

GoDucks
Name: GoDucks
Who do you know with myeloma?: me
When were you/they diagnosed?: March, 2017
Age at diagnosis: 61

Re: Judie's stem cell transplant

by JackieO on Sun Jul 08, 2018 7:36 pm

Judie,

How did your transplant go?

JackieO
Name: JackieO
Who do you know with myeloma?: Husband
When were you/they diagnosed?: May 2, 2018
Age at diagnosis: 53

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