Hi, I’m new to this forum. I was diagnosed in 2010, had chemo and transplant (7/2010). Have had no multiple myeloma cells detected in biopsies or tests since then.
Does that mean I do not have multiple myeloma now?
Feedback or thoughts appreciated.
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6 posts
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Fd85114 - Name: Fd85114
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Jan 2010
- Age at diagnosis: 40
Re: Is my multiple myeloma gone?
I have the same question. I was diagnosed I Nov 2011 , went to USC
And got an oncologist who specializes in multiple myloma. Started 3 months of Velcade, Revlimid and dex. Had an sct in march. Haven't had a bone marrow biopsy since the transplant. Once a month I have a complete labs blood check and all labs show everything is normal.
And got an oncologist who specializes in multiple myloma. Started 3 months of Velcade, Revlimid and dex. Had an sct in march. Haven't had a bone marrow biopsy since the transplant. Once a month I have a complete labs blood check and all labs show everything is normal.
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coop223 - Name: derek cooper
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: November 2011
- Age at diagnosis: 57
Re: Is my multiple myeloma gone?
No, it's not gone , just undetectable. The myeloma cells are just in remission. Perhaps one of the doctors will give the medical reason.
Enjoy your CR. Every day is precious!
Best to you,
Christina
Enjoy your CR. Every day is precious!
Best to you,
Christina
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Christina - Name: Christina
- When were you/they diagnosed?: June2005
- Age at diagnosis: 52
Re: Is my multiple myeloma gone?
Hi, I was dx in 2002 with MGUS. Feb 2010 I was dx with myeloma. Had an auto ScT in Nov 2010. I had not been on any meds at all . I have no bone lesions. I do have chromosome 13 depletion. Feb of 2012 , my M Spike rose to 1.1. I am now on rev, cytoxin and prednisone. My transplant physician is asking me to consider a mini allo transplant. Now I have major decisions again all of a sudden after no meds for almost a year and a half. I pray that your numbers hold but from I understand the myeloma cells always seem to come back. Each individual has to fight with the meds that give them the best response. I will keep you in my prayers.
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Music meme - Who do you know with myeloma?: Self
- When were you/they diagnosed?: Feb 2010
- Age at diagnosis: 53
Re: Is my multiple myeloma gone?
Hi Fd85114 !!
Chris, is dead on in her post to you.
One of the most sensitive (lowest detectability) tests is the PCR (polymerase chain reaction) test. It is difficult to find spots that perform this test, but if you succeed in finding a spot to get it done, it gives the greatest depth of response in terms of minimal residual disease. (MRD)
While a biopsy and aspiration are good tests..you might also want to consider having immunofixation tests, as it too detects MRD at a lower level than the BM tests. BM tests are highly dependent on the site where they are done and since multiple myeloma cells are not distributed evenly in bone of pelvis, it means they can hit a 'hot' spot or a 'not so hot spot". Immunofixation is also easier to find a site to do that tests and is one of the test criteria now being used in clinical trials to determine what they call a molecular response and is more indicative of depth of response vs. BM. PCR is very laborious and expensive, but worth it.
Wishing you all the best.
Chris, is dead on in her post to you.
One of the most sensitive (lowest detectability) tests is the PCR (polymerase chain reaction) test. It is difficult to find spots that perform this test, but if you succeed in finding a spot to get it done, it gives the greatest depth of response in terms of minimal residual disease. (MRD)
While a biopsy and aspiration are good tests..you might also want to consider having immunofixation tests, as it too detects MRD at a lower level than the BM tests. BM tests are highly dependent on the site where they are done and since multiple myeloma cells are not distributed evenly in bone of pelvis, it means they can hit a 'hot' spot or a 'not so hot spot". Immunofixation is also easier to find a site to do that tests and is one of the test criteria now being used in clinical trials to determine what they call a molecular response and is more indicative of depth of response vs. BM. PCR is very laborious and expensive, but worth it.
Wishing you all the best.
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suzierose - Name: suzierose
- When were you/they diagnosed?: 2 sept 2011
Re: Is my multiple myeloma gone?
Thanks for the comments and feedback!
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Fd85114 - Name: Fd85114
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: Jan 2010
- Age at diagnosis: 40
6 posts
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