[Ginny1]

Is my MGUS progressing?

by Ginny1 on Sat May 31, 2014 8:10 pm

Hi,

I'm new here and have a few questions.

First, I was diagnosed with MGUS last July and at that time I had 1 M spike of 0.9. However now the lab sheets read 2 M spikes. One is 0.5 and the other is 0.3. There is a third but lab doesn't mention any thing about the 0.1 other than saying abnormal.

Other results: Lambda increased from 34 to 36 and ratio is 0.14. Also the immunoglobin has gone from 1474 to 1610. Plus a few faint bands in the urine. However calcium and albumin are fine ( calcium is 10.1).

Questions:
Does having more than 1 M spike mean it's poly and has a better outlook ?
Or, does this look like it's progressing ?

Also have short lived pain in lower back and extremely weak feet at times. Foot problem lasts less than a minute!

Any help will be appreciated!

[elizabeth104]

Re: Is my MGUS progressing?

by elizabeth104 on Sun Jun 01, 2014 1:43 pm

Have you had a bone marrow biopsy?

[Ginny1]

Re: Is my MGUS progressing?

by Ginny1 on Sun Jun 01, 2014 5:45 pm

Well, my doctor told me last year that "legally " he had to tell me that I should have a biopsy done, but I asked him, given my labs results then, would he treat me, and he said " no". Therefore I declined, but he said when I'm ready it should be done.

I'm thinking I might do it on next visit due to changes in labs. What are your thoughts? Labs not looking good .?

[terryl1]

Re: Is my MGUS progressing?

by terryl1 on Sun Jun 01, 2014 6:16 pm

Hi Ginny, IMHO, I would listen to your doctor and have the bone marrow biopsy. I have had five, and they are tolerable. It would also be advisable to have imaging of your bones based on your pain.

I am glad I listened to my doctor and had the bone marrow biopsy because I have a form of myeloma wherein my SPEP's are normal. Without the BMB having been done, I would have never known what I was harboring.

I think you know your doctor is correct and you should probably act accordingly. Knowledge is power. Good luck.

[Ginny1]

Re: Is my MGUS progressing?

by Ginny1 on Sun Jun 01, 2014 9:34 pm

Thanks so much for responding . I'm having a bone survey done 6/16 and MD 6/18. Hope the results if test are in by then. Also waiting results if 24 hour urine this week.
Do you know anything about having more than one M spike ?