Hi everyone,
My name is Jon and my mother (59 yrs) was just diagnosed last week with Stage 1. At this time she is still in very good shape and I hope it lasts for a long time. Needless to say this first week has been spent doing lots of research and setting up the first of what will probably be many appointments. I just wanted to say thanks for putting this forum together and I look forward to reading all the stories and info in the forums.
In recent time my mother and father split up and I happen to live 2000 miles away. My sister lives close by and I can already feel the burden that she will likely endure. I am very afraid of the limitations due to distance and I fear my ability to do as much as I can won't be enough.
At this time we are all trying to be as proactive and positive as we can, learning and doing our best to research all we can. Thanks for taking the time to say hello.
Stay safe,
-Jon
Forums
2 posts
• Page 1 of 1
-
cheifitj - Name: Jon
- Who do you know with myeloma?: My Mom
- When were you/they diagnosed?: May 2012
- Age at diagnosis: 59
Re: Intro for my Mom.
I'm glad you found us here, Jon, but I'm sorry that myeloma has entered your life and the life of your family.
As you've already noticed, there is a lot of useful information here in the forum and elsewhere here at the Beacon, and a lot of knowledgeable patients, caregivers, and physicians who regularly post in the forum and in comments on the news articles and opinion columns. So you shouldn't hesitate to put up any questions you have, in addition to sharing more about your mother's situation and the sort of treatment options you're looking at.
One thing you should know in advance is that there are different opinions about how best to treat myeloma. As you do your initial reading about myeloma, you'll come across opinions that seem almost exactly the opposite of one another in terms of what is the best approach to take. That's just the way it is right now ... there are still a number of very important open questions, so don't let that confuse you.
Despite the controversies, by the way, the good news is that there are, in fact, lots of really good treatment options. The fact that there are controversies is, in many ways, a reflection of the many different treatment options available to myeloma patients these days.
As to the situation with you and your sister, I think it's probably wise to have an open discussion with her about how the two of you can best share the burden of helping your mother. I know there are limitations to what you can do given the distance issue you mention. Still, you won't know how best to help your sister with the burden unless you speak openly with her about it.
As you've already noticed, there is a lot of useful information here in the forum and elsewhere here at the Beacon, and a lot of knowledgeable patients, caregivers, and physicians who regularly post in the forum and in comments on the news articles and opinion columns. So you shouldn't hesitate to put up any questions you have, in addition to sharing more about your mother's situation and the sort of treatment options you're looking at.
One thing you should know in advance is that there are different opinions about how best to treat myeloma. As you do your initial reading about myeloma, you'll come across opinions that seem almost exactly the opposite of one another in terms of what is the best approach to take. That's just the way it is right now ... there are still a number of very important open questions, so don't let that confuse you.
Despite the controversies, by the way, the good news is that there are, in fact, lots of really good treatment options. The fact that there are controversies is, in many ways, a reflection of the many different treatment options available to myeloma patients these days.
As to the situation with you and your sister, I think it's probably wise to have an open discussion with her about how the two of you can best share the burden of helping your mother. I know there are limitations to what you can do given the distance issue you mention. Still, you won't know how best to help your sister with the burden unless you speak openly with her about it.
2 posts
• Page 1 of 1
Return to Member Introductions / Personal Stories