My dad was diagnosed with myeloma at the age of 65 in February of this year. He responded well to the chemo pills and shots. He will be doing the stem cell transplant where they will harvest his stem cells around the end of May.
We are now trying to decide whether or not my dad should do the transplant outpatient at City of Hope or inpatient at UCLA Ronald Reagan Hospital.
Has anyone had experience having the outpatient procedure at City of Hope or inpatient at UCLA Hospital?
City of Hope is now doing the procedure outpatient, so I'm a bit concerned in terms of any complications due to that.
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Re: Inpatient or outpatient stem cell transplant (SCT)?
Stroung,
If you go to the top right of the forum page, you will see a link called "Advanced search". Type in "City of Hope" or "UCLA". Make sure you click on "Search within post subjects and message text".
I know there have been a few folks that have used City of Hope (COH) in the past year or so on this forum.
I'm sure others on this forum that have used these facilities will chime in. There have also been discussions on inpatient versus outpatient SCT on this forum. You can do the same kind of search using "outpatient SCT" or "outpatient transplant".
BTW,
Beacon Staff: If would be great if you made search simply default to the above filter. In my experience, I rarely (if ever) get any hits when I do a search with the default "post subjects"
If you go to the top right of the forum page, you will see a link called "Advanced search". Type in "City of Hope" or "UCLA". Make sure you click on "Search within post subjects and message text".
I know there have been a few folks that have used City of Hope (COH) in the past year or so on this forum.
I'm sure others on this forum that have used these facilities will chime in. There have also been discussions on inpatient versus outpatient SCT on this forum. You can do the same kind of search using "outpatient SCT" or "outpatient transplant".
BTW,
Beacon Staff: If would be great if you made search simply default to the above filter. In my experience, I rarely (if ever) get any hits when I do a search with the default "post subjects"
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Inpatient or outpatient stem cell transplant (SCT)?
Thanks for the feedback, Multibilly, about the forum's search function. (And our apologies, Struong987, for hijacking your thread to discuss searching on the forum.)
We've gone back and forth on what to make the default settings for the forum search box.
The reason the default is what it is now is because for simple searches -- using, for example, a drug name -- using the approach you've suggested turns tons up a ton of individual postings, but all those postings often don't give you a sense of the overall discussions that have taken place on the topic.
In contrast, the way search is set up now, if you do a search on a drug name, or keywords like "transplant" or "mgus", you'll easily be able to find most of discussions on those topics, and then choose the ones that particularly interest you.
We admit that, like you (Multibilly), we use the advanced search functionality a lot ourselves. But our sense is that the advanced functionality is better suited to people who are really familiar with the forum, and looking for specific postings, rather than the more typical (casual) forum participant, who is probably looking for topics rather than individual postings.
Maybe our impressions on this are wrong. But I can assure you we've given it a decent amount of thought.
One thing we may do in the short term is put together a short "How to find things in the forum" posting describing how to use the search box effectively.
Longer term, it also may be possible to make it so that the default search settings can be tweaked by individual users in their User Control Panel. But that will take a bit more effort, so don't hold your breath for now!
Also, one thing we've been doing the past several months is more closely monitoring the subjects that are used to describe forum discussions. By monitoring -- and tweaking them, as necessary -- we've been trying to ensure that searches will be more likely to turn up relevant forum discussions.
Thanks again for the suggestion.
We've gone back and forth on what to make the default settings for the forum search box.
The reason the default is what it is now is because for simple searches -- using, for example, a drug name -- using the approach you've suggested turns tons up a ton of individual postings, but all those postings often don't give you a sense of the overall discussions that have taken place on the topic.
In contrast, the way search is set up now, if you do a search on a drug name, or keywords like "transplant" or "mgus", you'll easily be able to find most of discussions on those topics, and then choose the ones that particularly interest you.
We admit that, like you (Multibilly), we use the advanced search functionality a lot ourselves. But our sense is that the advanced functionality is better suited to people who are really familiar with the forum, and looking for specific postings, rather than the more typical (casual) forum participant, who is probably looking for topics rather than individual postings.
Maybe our impressions on this are wrong. But I can assure you we've given it a decent amount of thought.
One thing we may do in the short term is put together a short "How to find things in the forum" posting describing how to use the search box effectively.
Longer term, it also may be possible to make it so that the default search settings can be tweaked by individual users in their User Control Panel. But that will take a bit more effort, so don't hold your breath for now!
Also, one thing we've been doing the past several months is more closely monitoring the subjects that are used to describe forum discussions. By monitoring -- and tweaking them, as necessary -- we've been trying to ensure that searches will be more likely to turn up relevant forum discussions.
Thanks again for the suggestion.
Re: Inpatient or outpatient stem cell transplant (SCT)?
I did my transplant outpatient and by that I mean I actually went home the day after the transplant. This worked because I live only a 20-25 minute drive from the transplant center. I did have some worries about not being at the hospital in the event of complications and also because it was done in the winter and snowy travel could be an issue.
But I went in for blood draws every day for about two and half weeks and I felt well cared for. It was certainly nice not to be confined to a hospital. You are less exposed to possible infection and definitely can rest better outside the hospital environment.
But I went in for blood draws every day for about two and half weeks and I felt well cared for. It was certainly nice not to be confined to a hospital. You are less exposed to possible infection and definitely can rest better outside the hospital environment.
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goldmine848 - Name: Andrew
- When were you/they diagnosed?: June 2013
- Age at diagnosis: 60
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