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Questions and discussion about monoclonal gammopathy of undetermined significance (i.e., diagnosis, risk of progression, living with the disease, etc.)

I just learned I have MGUS

by tracyam73 on Thu Nov 19, 2015 9:50 am

I am so new to all of this so any and all info would be great!

Quick question. The cancer center that I go to has a website where I can see my lab results as I have bloodwork. Monday they drew blood and my wbc, gran#, Ig were all elevated. Also anion gap was low. Does this mean anything?

I appreciate any info on MGUS and answers to my above question. Thanks :)

tracyam73

Re: I just learned I have MGUS

by TerryH on Thu Nov 19, 2015 10:46 am

Hi Tracy,

It can be a bit overwhelming at first, learning all that there is to know about MGUS and the related disorders. But just take it a little bit at a time, and you'll slowly pick up all you need to know. This forum is a good place to do that, as there are lots of people going through the same thing, and lots of people with really good knowledge about the disease.

For example, this posting by Multibilly yesterday afternoon will probably answer a lot of the questions that you have.

One important thing you can do right now is start keeping track of your lab results. Even if your hospital or doctor's office has the results online, print them out, and put them in a folder or binder. You never know if you'll be with the same hospital or doctor's office 5 or 10 years from now.

Also, if you can, use something like Excel or Google Sheet to start tracking and graphing your main lab results. Start with your immunoglobulin levels (IgG, IgA, IgM) and your M-spike, and also your free light chain levels.

Then, start adding more results, like your calcium, creatinine, hemoglobin, etc. It's really useful to get comfortable with the trends in the lab results and how they can bounce around.

Good luck!

TerryH

Re: I just learned I have MGUS

by GinnyD on Thu Nov 26, 2015 11:15 am

I'm just starting this MGUS journey myself. Multibilly and a few others have been really helpful in answering questions and lending support.

Sorry we're both here, but grateful there was a place for us to come.

GinnyD
Name: Ginny
When were you/they diagnosed?: MGUS
Age at diagnosis: 37

Re: I just learned I have MGUS

by tracyam73 on Wed Mar 02, 2016 8:53 pm

I haven't been on in ages. So thankful for you all and your input and answers!

tracyam73


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