The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: I don't want to do chemo again

by Eric Hofacket on Wed Nov 05, 2014 7:45 pm

Banrelk4 wrote:

A year ago, I was feeling much like you; none of the protocols (four of them, including a SCT) had helped very much, and the plasma cells in my bone marrow were at 47%. But then, I somehow ended up in a clinical trial (daratumumab), and now the plasma cells are less than 5%, and I feel healthy and energetic.

Wow, four theraries including SCT without much results, then daratumumnab knocks your plasma cell count from 47% to 5%. That is a lot to think about. Dramatically different results from finally finding the right agent before it is too late. Good to see you are doing well.

Eric Hofacket
Name: Eric H
When were you/they diagnosed?: 01 April 2011
Age at diagnosis: 44

Re: I don't want to do chemo again

by joe on Sat Nov 08, 2014 11:26 am

Sharon Hardy ,i hear you just had more chemo and as i write this i am in pain bone pain hurts so bad but Sharon i would do the chemo fight the pain let it knock you down but not out get up and fight lets hope there is a cure around the corner waiting for us sharon so wed dont need chemo sending much love xo xo.

joe

Re: I don't want to do chemo again

by darnold on Mon Nov 10, 2014 7:22 pm

Hi Sharon. I was in Stage 3 when I was diagnosed and started treatment. At that time, my "chemo" was thalidomide and dex, and I had side effects from both. But nothing like the side effects I had from the melphalan during my stem cell transplant.

I was living alone when I was diagnosed. My daughter came home every weekend, and I made supper plans with friends to come to my house every week so I wasn't totally isolated. My daughter eventually moved back home while she is in a doctoral program. The thought that she will move out eventually scares me.

I hope you've found a treatment that you are responding to and that is not making you so sick.

By the way, I made it to complete remission from Stage 3. That lasted about 2 years, then I was in almost complete remission for another 2 years. My lambda light chains started increasing last June, so I've been getting Velcade and dex to knock them back down.

Dana A

darnold
Name: Dana Arnold
Who do you know with myeloma?: self
When were you/they diagnosed?: May 2009
Age at diagnosis: 52

Previous

Return to Treatments & Side Effects