Hi Suzanne,
I wasn't sure when I read your post whether I should be laughing or crying - you are a wonderful writer! I second everything that everyone has said on this thread. Hopefully you've had a chance to share it with your husband and he's willing to start treatment. Almost everyone who gets a diagnosis of myeloma finds that their symptoms improve once they start treatment.
But now you. Please pace yourself with what you are doing. It's normal to want to take everything on yourself when a loved one is sick. But as someone once said, having myeloma is a marathon, not a sprint. You'll exhaust yourself if you try to do it all and then you won't be good for anything. So take care of yourself, find the chickens a new pot...home..., and find a good grocer that sells organic food.
One of the worst times on the myeloma journey is when you get the initial diagnosis. It's overwhelming and scary. Once your husband starts treatment (hopefully) things will settle down to a new normal.
Please let us know what happens.
Lyn
Forums
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Christa's Mom - Name: Christa's Mom
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: September, 2010
- Age at diagnosis: 53
Re: Husband diagnosed 5 months ago; how to stay cheerful?
Hi Suzanne,
My husband was diagnosed the same month as yours. After one cycle of cyclophosphamide, Velcade, and dexamethasone (CyBorD), he went into stringent complete response (sCR). That means he can survive many years ... just after 1 month!
If it was my diagnosis, I probably would have reacted as your husband did, as I don't "believe" in the western medical model and believe food is my medicine.
BUT, I have spent hours researching multiple myeloma and if I had a diagnosis, I would definitely go with their miracle drugs. It is the only way. Your hubby can support his body with organic and healthy food rather than using more drugs to deal with side effects. He will then have the best of both worlds.
AND, like me, you are only human, so ask for help. Or set your priorities for your health first so you can be available for your husband.
Very best to you, how are things going? My husband must complete 9 cycles of treatment even tho he is in "remission" but he is back golfing and getting his life back..
I really hope your husband has come around with a bit more time and education. I have read if you do not get treated you typically have less than one year, for those unfortunate people who do not have access to health care!
All the best.
My husband was diagnosed the same month as yours. After one cycle of cyclophosphamide, Velcade, and dexamethasone (CyBorD), he went into stringent complete response (sCR). That means he can survive many years ... just after 1 month!
If it was my diagnosis, I probably would have reacted as your husband did, as I don't "believe" in the western medical model and believe food is my medicine.
BUT, I have spent hours researching multiple myeloma and if I had a diagnosis, I would definitely go with their miracle drugs. It is the only way. Your hubby can support his body with organic and healthy food rather than using more drugs to deal with side effects. He will then have the best of both worlds.
AND, like me, you are only human, so ask for help. Or set your priorities for your health first so you can be available for your husband.
Very best to you, how are things going? My husband must complete 9 cycles of treatment even tho he is in "remission" but he is back golfing and getting his life back..
I really hope your husband has come around with a bit more time and education. I have read if you do not get treated you typically have less than one year, for those unfortunate people who do not have access to health care!
All the best.
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lyynda - Name: Lynda
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: March 2016
- Age at diagnosis: 72
Re: Husband diagnosed 5 months ago; how to stay cheerful?
Hi Suzanne,
I am 53 and was diagnosed in May. For the first two weeks, I was feeling terrible and thought if this is it, then I would rather go now.
I am coming to the end of my 4th cycle of Velcade, cyclophosphamide, and dexamethasone.
Chemo is not a big deal, but obviously you are not as capable as you once were.
If your husband wants to pull the pin, then that is up to him. But if he wants to live, then you must drag him down to start chemo, and in a month I guarantee he will see the light and be feeling 100 times better than he does now.
He must be tough, because I don't think I would be around now if I had not started chemo straight away.
Good luck, but drag him kicking and screaming to the hospital to start treatment.
Regards,
Mike
I am 53 and was diagnosed in May. For the first two weeks, I was feeling terrible and thought if this is it, then I would rather go now.
I am coming to the end of my 4th cycle of Velcade, cyclophosphamide, and dexamethasone.
Chemo is not a big deal, but obviously you are not as capable as you once were.
If your husband wants to pull the pin, then that is up to him. But if he wants to live, then you must drag him down to start chemo, and in a month I guarantee he will see the light and be feeling 100 times better than he does now.
He must be tough, because I don't think I would be around now if I had not started chemo straight away.
Good luck, but drag him kicking and screaming to the hospital to start treatment.
Regards,
Mike
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Mike13 - Name: Mike
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: 14/05/16
- Age at diagnosis: 53
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