Hello all,
I am only a few weeks away from my inpatient autologous stem cell transplant at City Of Hope. I just went through all my pre testing. My wife and I also had a class on being an inpatient with multiple myeloma. It was very helpful for both of us. And social services was great at City Of Hope.
One thing that came up with social services was a caregiver. We live 400 miles round trip from City of Hope. So we have a caregiver when I come home. But I am thinking of staying near City of Hope for about a week after discharge, as I will be having 2 doctor visits that following week.
City of Hope has what they call their village where I would be able to stay if I have a 24/7 caregiver. Being that my wife isn't driving, she cannot be a caregiver. And we have no family in that area.
So my question here is how I can find caregiver services, specifically in the area around City Of Hope. Any input would be greatly appreciated.
Thank You,
castaway
Forums
5 posts
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Castaway - Name: George
- Who do you know with myeloma?: just myself
- When were you/they diagnosed?: 1/24/14
- Age at diagnosis: 62
Re: How to find a caregiver?
Hi castaway.
Sorry I cannot directly answer your question, but I may have a workaround.
I was my husband's caregiver (though I think most caregivers considerate it a two directional thing) during his outpatient transplant last June 2016. i took the 7 weeks off work (including pre-transplant time, the transplant, and recovery of his WBC) that our program recommended. We were lucky enough to live 2.5 miles from our center, so we stayed in our home.
Driving was such a small part of it all.
If your wife is going to be with you and the only issue is transportation, you might check the American Cancer Society "Road to Recovery" program for drivers for all your scheduled visits.
Sorry I cannot directly answer your question, but I may have a workaround.
I was my husband's caregiver (though I think most caregivers considerate it a two directional thing) during his outpatient transplant last June 2016. i took the 7 weeks off work (including pre-transplant time, the transplant, and recovery of his WBC) that our program recommended. We were lucky enough to live 2.5 miles from our center, so we stayed in our home.
Driving was such a small part of it all.
If your wife is going to be with you and the only issue is transportation, you might check the American Cancer Society "Road to Recovery" program for drivers for all your scheduled visits.
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rick - Name: rick
- Who do you know with myeloma?: husband
- When were you/they diagnosed?: nov 2015
- Age at diagnosis: 50
Re: How to find a caregiver?
Rick,
Thank you for your input. Actually my wife will not be with me when I stay at the village part of City Of Hope. I will need to hire a caregiver for the time I will be there. A week to 10 days. It's just to get in my first few visits after discharge with my doctor at City of Hope.
Thank you, Castaway
Thank you for your input. Actually my wife will not be with me when I stay at the village part of City Of Hope. I will need to hire a caregiver for the time I will be there. A week to 10 days. It's just to get in my first few visits after discharge with my doctor at City of Hope.
Thank you, Castaway
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Castaway - Name: George
- Who do you know with myeloma?: just myself
- When were you/they diagnosed?: 1/24/14
- Age at diagnosis: 62
Re: How to find a caregiver?
I looked into this issue since I needed to designate a backup to my primary caregiver during my autologous stem cell transplant. Best I could come up with was home help / health agencies local to where I was treated. They provide 24/7 in-home care for seniors all the time. But it can be expensive.
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jrj001 - Name: Jim
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: 3/15
- Age at diagnosis: 61
Re: How to find a caregiver?
Jrj001,
Thank you for the reply. I was just given a list of caregivers in the area where I will have my transplant as an inpatient. Unfortunately, the list is two years old. Some of the contact info is no longer available.
So I was able to speak with the Hope Village yesterday. Patients come from all over to City of Hope and need to use the Hope Village. And also need caregivers. So the staff there was kind enough to give me three caregiver businesses that have been used at Hope Village by other patients. I will be contacting all three and take it from there.
My transplant date is June 12 and I will be an inpatient. But will need to stay a week or so after discharge at the Hope Village. I am thinking about posting my transplant journey and also sharing the caregiver part of things. I really think the caregiver part has been the biggest struggle for me so far. Finding one for when I get home is finally taken care of. Now just selecting one from my list of 3 for the Hope Village.
Thank You,
Castaway
Thank you for the reply. I was just given a list of caregivers in the area where I will have my transplant as an inpatient. Unfortunately, the list is two years old. Some of the contact info is no longer available.
So I was able to speak with the Hope Village yesterday. Patients come from all over to City of Hope and need to use the Hope Village. And also need caregivers. So the staff there was kind enough to give me three caregiver businesses that have been used at Hope Village by other patients. I will be contacting all three and take it from there.
My transplant date is June 12 and I will be an inpatient. But will need to stay a week or so after discharge at the Hope Village. I am thinking about posting my transplant journey and also sharing the caregiver part of things. I really think the caregiver part has been the biggest struggle for me so far. Finding one for when I get home is finally taken care of. Now just selecting one from my list of 3 for the Hope Village.
Thank You,
Castaway
-
Castaway - Name: George
- Who do you know with myeloma?: just myself
- When were you/they diagnosed?: 1/24/14
- Age at diagnosis: 62
5 posts
• Page 1 of 1
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