How many multiple myeloma patients have lesions? In a group of multiple myeloma patients I recently met, only about half had lesions. I thought 100 percent of multiple myeloma sufferers had bone lesions?
Tom74
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Tom74 - Name: Tom Meredith
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: 9/5/15
- Age at diagnosis: 73
Re: How common are bone lesions?
Hi Tom:
I am not sure what percentage of multiple myeloma patients have lesions; I have never seen any research on it. But I certainly do, and many of them.
I am also one of those unusual multiple myeloma patients that has 0 protein involvement - no M spike, etc, and no other organ involvement (kidneys). To add to my unusualness, during my initial treatment I also suffered a anterior ischemic optical neuropathy (AION), which they believe was caused by my anemia brought on by the multiple myeloma, so I have lost most of the vision in my right eye. You just never know what this disease is going to throw at you.
From reading this forum and speaking with friends with multiple myeloma, we are all so different, and no two of us have identical symptoms. I like to say that we are like snowflakes, in the same family, but just a little different in some way. In my opinion, that's what makes it so difficult for the doctors to come up with a cure.
Hope you find an answer, I would like to know those stats as well.
Kathleen
I am not sure what percentage of multiple myeloma patients have lesions; I have never seen any research on it. But I certainly do, and many of them.
I am also one of those unusual multiple myeloma patients that has 0 protein involvement - no M spike, etc, and no other organ involvement (kidneys). To add to my unusualness, during my initial treatment I also suffered a anterior ischemic optical neuropathy (AION), which they believe was caused by my anemia brought on by the multiple myeloma, so I have lost most of the vision in my right eye. You just never know what this disease is going to throw at you.
From reading this forum and speaking with friends with multiple myeloma, we are all so different, and no two of us have identical symptoms. I like to say that we are like snowflakes, in the same family, but just a little different in some way. In my opinion, that's what makes it so difficult for the doctors to come up with a cure.
Hope you find an answer, I would like to know those stats as well.
Kathleen
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kshornb - Name: kshornber
- Who do you know with myeloma?: self
- When were you/they diagnosed?: July 2015
- Age at diagnosis: 52
Re: How common are bone lesions?
Hi Tom,
According to data I posted in this forum thread,
https://myelomabeacon.org/forum/most-common-symptoms-at-multiple-myeloma-diagnosis-t6280.html
about 80% of (symptomatic) multiple myeloma patients have bone lesions at the time of their diagnosis.
From the same post, here are more complete details on how many myeloma patients at diagnosis have each of the four classic "CRAB" symptoms:
- Anemia (<12 g/100 ml) - 72%
- Bone lesions (lytic lesions, pathologic fractures or severe osteopenia) - 80%
- Renal failure (serum creatinine greater than or equal to 2 mg/100 ml) - 19%
- Hypercalcemia (greater than or equal to 11 mg/100 ml) - 13%
According to data I posted in this forum thread,
https://myelomabeacon.org/forum/most-common-symptoms-at-multiple-myeloma-diagnosis-t6280.html
about 80% of (symptomatic) multiple myeloma patients have bone lesions at the time of their diagnosis.
From the same post, here are more complete details on how many myeloma patients at diagnosis have each of the four classic "CRAB" symptoms:
- Anemia (<12 g/100 ml) - 72%
- Bone lesions (lytic lesions, pathologic fractures or severe osteopenia) - 80%
- Renal failure (serum creatinine greater than or equal to 2 mg/100 ml) - 19%
- Hypercalcemia (greater than or equal to 11 mg/100 ml) - 13%
Re: How common are bone lesions?
Hello,
My husband has bone lesions, which is what led to his diagnosis, but he also had M-spike, so first did radiation, then chemo, and then a stem cell transplant. As of now after 2 rounds of Revlimid maintenance, decision was made since no signs in blood test shows anything to stop Revlimid, keep testing. And I guess we keep praying.
I too wonder about the lesions and if they have any additional meaning.
Snowflakes is a great analogy for sure. God bless all and the caregivers, as I am one. It is a difficult place to be also. Like fighting with your hands tied behind your back. So all you can do is dodge the punches.
Keep dodging and know your never alone.
God Bless
My husband has bone lesions, which is what led to his diagnosis, but he also had M-spike, so first did radiation, then chemo, and then a stem cell transplant. As of now after 2 rounds of Revlimid maintenance, decision was made since no signs in blood test shows anything to stop Revlimid, keep testing. And I guess we keep praying.
I too wonder about the lesions and if they have any additional meaning.
Snowflakes is a great analogy for sure. God bless all and the caregivers, as I am one. It is a difficult place to be also. Like fighting with your hands tied behind your back. So all you can do is dodge the punches.
Keep dodging and know your never alone.
God Bless
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nanaofbkma - Name: Deb
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: Jan 2015
- Age at diagnosis: 65
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