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Questions and discussion about monoclonal gammopathy of undetermined significance (i.e., diagnosis, risk of progression, living with the disease, etc.)

Hip pain not long after MGUS diagnosis

by Megal928 on Thu Nov 02, 2017 1:09 pm

I am 40 years old and I was diagnosed with MGUS 4 months ago. Shortly after diagnosis, I started experiencing right hip pain. It hurts to walk, and the other night while sleeping it hurt so bad I couldn’t even lie on my right side. I also have been very fatigued, even though my doctor claims that, because I’m not anemic, the fatigue is no from MGUS.

I don’t go back to see my hematologist / oncologist for another 2 months, but is this hip pain some­thing I should be concerned about?

Megal928
Name: Megan
Who do you know with myeloma?: Me
When were you/they diagnosed?: July, 2017
Age at diagnosis: 40

Re: Hip pain not long after MGUS diagnosis

by Multibilly on Thu Nov 02, 2017 2:26 pm

Hi Megan,

I would personally be concerned enough to want to at least get an xray of your hip to get to the bottom of your pain. If possible, an MRI would be even better for detecting any myeloma-related issues. Having said that, your pain could also be due to some muscular or nerve-related issue that might benefit from physical therapy and/or steroid treatment. Note that I've experienced both issues since my smoldering myeloma diagnosis, but neither issue was due to myeloma, and I was able to overcome both issues through exercise, physical therapy, and/or a single cortisone shot. But a doctor would obviously need to first diagnose the source of your pain.

Why not hook up with your GP (or a orthopedic doctor) to get to the bottom of this? You can let the doctor know that you have a concern that there might be a possibility that the pain could be due to myeloma and to be on the lookout for lytic lesions and/or other skeletal issues.

Multibilly
Name: Multibilly
Who do you know with myeloma?: Me
When were you/they diagnosed?: Smoldering, Nov, 2012


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